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The management of chronic disease and the contribution patients
make to their own care is attracting widespread attention,
nationally and internationally. A range of self-management courses
have been developed by Kate Lorig and her team at Stanford
University's Medical School since the early 1980s, some of which
have now been implemented throughout England and across other parts
of the UK. Designed for people with long-term health conditions,
they are delivered by hundreds of agencies worldwide, and
differentiate the concept of disease management (to be done by a
health care professional) from the individual's management of life
with a long-term condition (self-management). This book explores
how this work became valued within the NHS and local communities
and also airs the arguments about the importance of lay leadership.
It brings together those who have been instrumental in developing
these courses, and assesses the value they hold for the different
groups involved directly in them (participants, course trainers,
staff), and those it will affect indirectly (GPs, nurses, policy
makers, commissioners). The reader will find personal experience
and accounts of the excitement in designing new work. Reflection on
what happens to people attending courses is set alongside
consideration of radical questions about the need for resilient
communities. Next, the research reports are followed by
considerations for policy makers and local agencies, voluntary and
statutory. Finally, questions about the future direction and links
to local communities are raised.
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