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A diagnosis of dementia changes the ways people engage with each
other - for those living with dementia, as well their families,
caregivers, friends, health professionals, neighbours, shopkeepers
and the community. Medical understandings, necessary as they are,
provide no insights into how we may all live good lives with
dementia. This innovative volume brings together an
interdisciplinary group of researchers and practitioners to focus
on dementia as lived experience. It foregrounds dementia's social,
moral, political and economic dimensions, investigating the
challenges of reframing the dementia experience for all involved.
Part I critiques the stigmas, the negativity, language and fears
often associated with a dementia diagnosis, challenging
debilitating representations and examining ways to tackle these.
Part II examines proactive practices that can support better
long-term outcomes for those living with dementia. Part III looks
at the relational aspects of dementia care, acknowledging and going
beyond the notion of person-centred care. Collectively, these
contributions highlight the social and relational change required
to enhance life for those with dementia and those who care for
them. Engaging in a critical conversation around personhood and
social value, this book examines the wider social contexts within
which dementia care takes place. It calls for social change, and
looks for inspiration to the growing movement for relational care
and the caring society. Dementia as Social Experience is important
reading for all those people who, in various ways, are living with
dementia, as well as for those working in this area as clinicians,
researcher and carers.
A diagnosis of dementia changes the ways people engage with each
other - for those living with dementia, as well their families,
caregivers, friends, health professionals, neighbours, shopkeepers
and the community. Medical understandings, necessary as they are,
provide no insights into how we may all live good lives with
dementia. This innovative volume brings together an
interdisciplinary group of researchers and practitioners to focus
on dementia as lived experience. It foregrounds dementia's social,
moral, political and economic dimensions, investigating the
challenges of reframing the dementia experience for all involved.
Part I critiques the stigmas, the negativity, language and fears
often associated with a dementia diagnosis, challenging
debilitating representations and examining ways to tackle these.
Part II examines proactive practices that can support better
long-term outcomes for those living with dementia. Part III looks
at the relational aspects of dementia care, acknowledging and going
beyond the notion of person-centred care. Collectively, these
contributions highlight the social and relational change required
to enhance life for those with dementia and those who care for
them. Engaging in a critical conversation around personhood and
social value, this book examines the wider social contexts within
which dementia care takes place. It calls for social change, and
looks for inspiration to the growing movement for relational care
and the caring society. Dementia as Social Experience is important
reading for all those people who, in various ways, are living with
dementia, as well as for those working in this area as clinicians,
researcher and carers.
In 1997 Nancy de Vries accepted the Apology from the Parliament of
New South Wales on behalf of all the Indigenous children who had
been taken from their families and communities throughout the
state's history. It was an honour that recognised she had the
courage to speak about a life of pain and loneliness. Nancy tells
her story in an unusual and challenging collaboration with Dr
Gaynor Macdonald (Anthropology) of the University of Sydney,
Associate Professor Jane Mears (Social Policy) of the University of
Western Sydney and Dr Anna Nettheim (Anthropology) of the
University of Sydney.
People and Change in Indigenous Australia arose from a conviction
that more needs to be done in anthropology to give a fuller sense
of the changing lives and circumstances of Australian indigenous
communities and people. Much anthropological and public discussion
remains embedded in traditionalizing views of indigenous people,
and in accounts that seem to underline essential and apparently
timeless difference. In this volume the editors and contributors
assume that "the person" is socially defined and reconfigured as
contexts change, both immediate and historical. Essays in this
collection are grounded in Australian locales commonly termed
"remote". These indigenous communities were largely established as
residential concentrations by Australian governments, some first as
missions, most in areas that many of the indigenous people involved
consider their homelands. A number of these settlements were
located in proximity to settler industries - pastoralism,
market-gardening, and mining - locales that many non-indigenous
Australians think of as the homes of the most traditional
indigenous communities and people. The contributors discuss the
changing circumstances of indigenous people who originate from such
places, revealing a diversity of experiences and histories that
involve major dynamics of disembedding from country and home
locales, re-embedding in new contexts, and reconfigurations of
relatedness. The essays explore dimensions of change and continuity
in childhood experience and socialization in a desert community;
the influence of Christianity in fostering both individuation and
relatedness in northeast Arnhem Land; the diaspora of Central
Australian Warlpiri people to cities and the forms of life and
livelihood they make there; adolescent experiences of schooling
away from home communities; youth in kin-based heavy metal gangs
configuring new identities, and indigenous people of southeast
Australia reflecting on whether an "Aboriginal way" can be
sustained. By taking a step toward understanding the relation
between changing circumstances and changing lives of indigenous
Australians, the volume provides a sense of the quality and feel of
those lives.
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