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What prenatal tests and down syndrome reveal about our reproductive
choices When Alison Piepmeier-scholar of feminism and disability
studies, and mother of Maybelle, an eight-year-old girl with Down
syndrome-died of cancer in August 2016, she left behind an
important unfinished manuscript about motherhood, prenatal testing,
and disability. In Unexpected, George Estreich and Rachel Adams
pick up where she left off, honoring the important research of
their friend and colleague, as well as adding new perspectives to
her work. Based on interviews with parents of children with Down
syndrome, as well as women who terminated their pregnancies because
their fetus was identified as having the condition, Unexpected
paints an intimate, nuanced picture of reproductive choice in
today's world. Piepmeier takes us inside her own daughter's life,
showing how Down syndrome is misunderstood, stigmatized, and
condemned, particularly in the context of prenatal testing. At a
time when medical technology is rapidly advancing, Unexpected
provides a much-needed perspective on our complex, and frequently
troubling, understanding of Down syndrome.
What prenatal tests and down syndrome reveal about our reproductive
choices When Alison Piepmeier-scholar of feminism and disability
studies, and mother of Maybelle, an eight-year-old girl with Down
syndrome-died of cancer in August 2016, she left behind an
important unfinished manuscript about motherhood, prenatal testing,
and disability. In Unexpected, George Estreich and Rachel Adams
pick up where she left off, honoring the important research of
their friend and colleague, as well as adding new perspectives to
her work. Based on interviews with parents of children with Down
syndrome, as well as women who terminated their pregnancies because
their fetus was identified as having the condition, Unexpected
paints an intimate, nuanced picture of reproductive choice in
today's world. Piepmeier takes us inside her own daughter's life,
showing how Down syndrome is misunderstood, stigmatized, and
condemned, particularly in the context of prenatal testing. At a
time when medical technology is rapidly advancing, Unexpected
provides a much-needed perspective on our complex, and frequently
troubling, understanding of Down syndrome.
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