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Das Buch dokumentiert die Beitrage des internationalen Symposiums
"Assistierter Suizid: Der Stand der Wissenschaft" vom 15. Juni 2015
in Berlin. Es bietet einen einmaligen Uberblick uber die aktuellen
empirischen Untersuchungen zum Thema, die in der politischen
Debatte teilweise schlicht ignoriert wurden und immer noch
ignoriert werden. Es enthalt ausserdem die Transkripte
aufschlussreicher Pro-Contra Debatten zwischen Vertretern
unterschiedlicher Positionen aus den Fachgebieten Recht, Medizin
und Ethik. Am Schluss steht eine ausfuhrliche Kommentierung des
neuen Gesetzes "zur Strafbarkeit der geschaftsmassigen Forderung
der Selbsttotung" aus rechtlicher, medizinischer und ethischer
Perspektive.Die Autoren und Herausgeber sind international
ausgewiesene Experten aus Deutschland und aus anderen Staaten, in
denen die Totung auf Verlangen und/oder der assistierte Suizid
gesetzlich geregelt sind (Niederlande, Schweiz, USA).
Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a
progressive neurodegenerative disease that can cause profound
suffering for both the patient and their family. Whilst new
treatments for ALS are being developed, these are not curative and
offer only the potential to slow its progression. Palliative care
must therefore be integral to the clinical approach to the disease.
Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to
bereavement reflects the wide scope of this care; it must cover not
just the terminal phase, but support the patient and their family
from the onset of the disease. Both the multidisciplinary
palliative care team and the neurology team are essential in
providing a high standard of care and allowing quality of life
(both patient and carer) to be maintained. Clear guidelines are
provided to address care throughout the disease process. Control of
symptoms is covered alongside the psychosocial care of patients and
their families. Case studies are used to emphasise the complexity
of the care needs and involvement of the patient and family,
culminating in discussion of bereavement. Different models of care
are explored, and this new edition utilizes the increase in both
the evidence-base and available literature on the subject. New
topics discussed include complementary therapies, personal and
family experiences of ALS, new genetics research, and updated
guidelines for patient care, to ensure this new edition remains the
essential guide to palliative care in ALS.
As a result of its almost total displacement from the everyday life
environment death threatens to become a target for the projection
of various fears. This volume takes an interdisciplinary look at
this complex phenomenon, and attempts to examine its various
dimensions. The presentation of the possibilities of current
palliative medicine and ethical reflection upon it are shown to be
of particular importance.
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