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Das Buch dokumentiert die Beitrage des internationalen Symposiums
"Assistierter Suizid: Der Stand der Wissenschaft" vom 15. Juni 2015
in Berlin. Es bietet einen einmaligen Uberblick uber die aktuellen
empirischen Untersuchungen zum Thema, die in der politischen
Debatte teilweise schlicht ignoriert wurden und immer noch
ignoriert werden. Es enthalt ausserdem die Transkripte
aufschlussreicher Pro-Contra Debatten zwischen Vertretern
unterschiedlicher Positionen aus den Fachgebieten Recht, Medizin
und Ethik. Am Schluss steht eine ausfuhrliche Kommentierung des
neuen Gesetzes "zur Strafbarkeit der geschaftsmassigen Forderung
der Selbsttotung" aus rechtlicher, medizinischer und ethischer
Perspektive.Die Autoren und Herausgeber sind international
ausgewiesene Experten aus Deutschland und aus anderen Staaten, in
denen die Totung auf Verlangen und/oder der assistierte Suizid
gesetzlich geregelt sind (Niederlande, Schweiz, USA).
As a result of its almost total displacement from the everyday life
environment death threatens to become a target for the projection
of various fears. This volume takes an interdisciplinary look at
this complex phenomenon, and attempts to examine its various
dimensions. The presentation of the possibilities of current
palliative medicine and ethical reflection upon it are shown to be
of particular importance.
Patients with degenerative neurological disorders are among the
most handicapped patients in medicine. Many of these diseases are
incurable. Expert palliative care is the duty of every neurologist:
however, to date, this has not been a standard feature of
neurological practice or training. This book helps define a new
field, namely palliative care in neurology. It brings together all
necessary information for neurologists caring for a patient with
advance disease. Palliative care is an approach to the management
of patients with life-threatening illness that attempts to enhance
comfort, relieve psychosocial and spiritual distress, assure
respect for decision making, provide support for the family, and
prepare the patient and family for the end of life. This unique
book covers each of the many dimensions of palliative care as they
relate to patients with advanced neurological disorders. Basic
principles of palliative care and specific ethical issues (such as
euthanasia, food and hydration and advance directives) are covered.
The needs of populations with specific neurological disorders are
described and the management of symptoms that are common to all is
explored in detail. Each chapter introduces its topic using a case
report which may be used directly for teaching purposes. The
authors have put together an invaluable resource, which lays the
foundation for further research in the field.
Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a
progressive neurodegenerative disease that can cause profound
suffering for both the patient and their family. Whilst new
treatments for ALS are being developed, these are not curative and
offer only the potential to slow its progression. Palliative care
must therefore be integral to the clinical approach to the disease.
Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to
bereavement reflects the wide scope of this care; it must cover not
just the terminal phase, but support the patient and their family
from the onset of the disease. Both the multidisciplinary
palliative care team and the neurology team are essential in
providing a high standard of care and allowing quality of life
(both patient and carer) to be maintained. Clear guidelines are
provided to address care throughout the disease process. Control of
symptoms is covered alongside the psychosocial care of patients and
their families. Case studies are used to emphasise the complexity
of the care needs and involvement of the patient and family,
culminating in discussion of bereavement. Different models of care
are explored, and this new edition utilizes the increase in both
the evidence-base and available literature on the subject. New
topics discussed include complementary therapies, personal and
family experiences of ALS, new genetics research, and updated
guidelines for patient care, to ensure this new edition remains the
essential guide to palliative care in ALS.
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