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Is the cancer patient an object of job discrimination? Are the discriminatory claims of AIDS patients and patients of other chronic diseases accurate? According to this book the question is a moot one for its occurrence is an inevitable consequence of our social system and the characteristics of the disease. Work and Illness starts with the premise that work is a principle determinant in the quality of one's life particularly in the presence of a chronic illness. This book forcefully concludes that the study of the impact of chronic diseases on the labor market is not only a legitimate economic study but a social imperative to action. Ivan Barofsky, who in his position at the National Cancer Institute has focused on the quality of life of the cancer patient for the last ten years, takes the first step in this process. He has compiled the best available text on what is becoming a major social concern. The book, divided into two major sections, first provides an in-depth review of the available data on the work history of the cancer patient. The second section provides specific recommendations for future research and policy issues. In addition, the book discusses: work and insurance experiences of the cancer patient; the failure of the NCI sponsored Work-able Project; research agenda; policy objectives.
Quality, as exemplified by Quality-of-life (QoL) assessment, is frequently discussed among health care professionals and often invoked as a goal for improvement, but somehow rarely defined, even as it is regularly assessed. It is understood that some medical patients have a better QoL than others, but should the QoL achieved be compared to an ideal state, or is it too personal and subjective to gauge? Can a better understanding of the concept help health care systems deliver services more effectively? Is QoL worth measuring at all? Integrating concepts from psychology, philosophy, neurocognition, and linguistics, this book attempts to answer these complex questions. It also breaks down the cognitive-linguistic components that comprise the judgment of quality, including description, evaluation, and valuations, and applies them to issues specific to individuals with chronic medical illness. In this context, quality/QoL assessment becomes an essential contributor to ethical practice, a critical step towards improving the nature of social interactions. The author considers linear, non-linear, and complexity-based models in analyzing key methodology and content issues in health-related QoL assessment. This book is certain to stimulate debate in the research and scientific communities. Its forward-looking perspective takes great strides toward promoting a common cognitive-linguistic model of how the judgment of quality occurs, thereby contributing important conceptual and empirical tools to its varied applications, including QoL assessment.
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