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The Search for the Legacy of the USPHS Syphilis Study at Tuskegee
is a collection of essays that seeks to redefine the "legacy" of
the infamous Tuskegee Syphilis Study in light of recent findings
from other scientific studies that challenge the long-standing,
widely-held understanding of the study. These essays are written
with thoughtful attention to fully integrate the essayists'
perspectives on the impact of the study on the lives of Americans
today and place the legacy of the study within the evolving picture
of racial and ethnic relations in the United States. Each essayist
looks through his or her own personal and professional prism to
give an account of what constitutes that legacy today. Contributors
include the two leading historians of the Tuskeegee Syphilis Study
and two former Surgeons General of the United States as well as
other prominent scholars from the fields of public health,
bioethics, psychology, biostatistics, medicine, dentistry,
journalism, medical sociology, medical anthropology, and health
disparities research.
The Search for the Legacy of the USPHS Syphilis Study at Tuskegee
is a collection of essays that seeks to redefine the "legacy" of
the infamous Tuskegee Syphilis Study in light of recent findings
from other scientific studies that challenge the long-standing,
widely-held understanding of the study. These essays are written
with thoughtful attention to fully integrate the essayists'
perspectives on the impact of the study on the lives of Americans
today and place the legacy of the study within the evolving picture
of racial and ethnic relations in the United States. Each essayist
looks through his or her own personal and professional prism to
give an account of what constitutes that legacy today. Contributors
include the two leading historians of the Tuskeegee Syphilis Study
and two former Surgeons General of the United States as well as
other prominent scholars from the fields of public health,
bioethics, psychology, biostatistics, medicine, dentistry,
journalism, medical sociology, medical anthropology, and health
disparities research.
From 1932 to 1972, the United States Public Health Service
conducted a non-therapeutic experiment involving over 400 black
male sharecroppers infected with syphilis. The Tuskegee Study had
nothing to do with treatment. It purpose was to trace the
spontaneous evolution of the disease in order to learn how syphilis
affected black subjects. The men were not told they had syphilis;
they were not warned about what the disease might do to them; and,
with the exception of a smattering of medication during the first
few months, they were not given health care. Instead of the
powerful drugs they required, they were given aspirin for their
aches and pains. Health officials systematically deceived the men
into believing they were patients in a government study of "bad
blood", a catch-all phrase black sharecroppers used to describe a
host of illnesses. At the end of this 40 year deathwatch, more than
100 men had died from syphilis or related complications. "Bad
Blood" provides compelling answers to the question of how such a
tragedy could have been allowed to occur. Tracing the evolution of
medical ethics and the nature of decision making in bureaucracies,
Jones attempted to show that the Tuskegee Study was not, in fact,
an aberration, but a logical outgrowth of race relations and
medical practice in the United States. Now, in this revised edition
of "Bad Blood", Jones traces the tragic consequences of the
Tuskegee Study over the last decade. A new introduction explains
why the Tuskegee Study has become a symbol of black oppression and
a metaphor for medical neglect, inspiring a prize-winning play, a
Nova special, and a motion picture. A new concluding chapter shows
how the black community's wide-spread anger and distrust caused by
the Tuskegee Study has hampered efforts by health officials to
combat AIDS in the black community. "Bad Blood" was nominated for
the Pulitzer Prize and was one of the "N.Y. Times" 12 best books of
the year.
In this brilliant, groundbreaking biography, twenty years in the
making, James H. Jones presents a moving and even shocking portrait
of the man who pierced the veil of reticence surrounding human
sexuality. Jones shows that the public image Alfred Kinsey
cultivated of disinterested biologist was in fact a carefully
crafted public persona. By any measure he was an extraordinary man
and a man with secrets. Drawing upon never before disclosed facts
about Kinsey's childhood, Jones traces the roots of Kinsey's
scholarly interest in human sexuality to his tortured upbringing.
Between the sexual tensions of the culture and Kinsey's devoutly
religious family, Jones depicts Kinsey emerging from childhood with
psychological trauma but determined to rescue humanity from the
emotional and sexual repression he had suffered. New facts about
his marriage, family life, and relationships with students and
colleagues enrich this portrait of the complicated, troubled man
who transformed the state of public discourse on human sexuality."
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