A diagnosis of dementia changes the ways people engage with each other - for those living with dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. This innovative volume brings together an interdisciplinary group of researchers and practitioners to focus on dementia as lived experience. It foregrounds dementia's social, moral, political and economic dimensions, investigating the challenges of reframing the dementia experience for all involved. Part I critiques the stigmas, the negativity, language and fears often associated with a dementia diagnosis, challenging debilitating representations and examining ways to tackle these. Part II examines proactive practices that can support better long-term outcomes for those living with dementia. Part III looks at the relational aspects of dementia care, acknowledging and going beyond the notion of person-centred care. Collectively, these contributions highlight the social and relational change required to enhance life for those with dementia and those who care for them. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and the caring society. Dementia as Social Experience is important reading for all those people who, in various ways, are living with dementia, as well as for those working in this area as clinicians, researcher and carers.

A diagnosis of dementia changes the ways people engage with each other - for those living with dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. This innovative volume brings together an interdisciplinary group of researchers and practitioners to focus on dementia as lived experience. It foregrounds dementia's social, moral, political and economic dimensions, investigating the challenges of reframing the dementia experience for all involved. Part I critiques the stigmas, the negativity, language and fears often associated with a dementia diagnosis, challenging debilitating representations and examining ways to tackle these. Part II examines proactive practices that can support better long-term outcomes for those living with dementia. Part III looks at the relational aspects of dementia care, acknowledging and going beyond the notion of person-centred care. Collectively, these contributions highlight the social and relational change required to enhance life for those with dementia and those who care for them. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and the caring society. Dementia as Social Experience is important reading for all those people who, in various ways, are living with dementia, as well as for those working in this area as clinicians, researcher and carers.

First published in 1999, this book is based on social policy research, taking a particular view of the nature of social policy, one that focuses on the direct impact of all public policies on the welfare of citizens and which defines policy as inclusive of all areas of policy development and implementation. The view of policy which clients and customers provide is thus a significant dimension of social policy. The research is one of the few studies which focuses specifically on carers who are also in the paid work force and want to remain in paid work and to fulfil their caring responsibilities. An overriding concern of the research is how workplaces, government policy and community attitudes can be changed to foster a better and more supportive environment for workers who are caring. The research points to the need to change workplace policies and organisational cultures to confer legitimacy on the felt obligation and responsibility to care for older relatives. The responsibility of employers are explored and the knowledge, competencies and time management skills demonstrated in unpaid caring work are found to match the 'skill get' generally required of a modern manager, thereby offering important lessons for employer and employee alike.

First published in 1999, this book is based on social policy research, taking a particular view of the nature of social policy, one that focuses on the direct impact of all public policies on the welfare of citizens and which defines policy as inclusive of all areas of policy development and implementation. The view of policy which clients and customers provide is thus a significant dimension of social policy. The research is one of the few studies which focuses specifically on carers who are also in the paid work force and want to remain in paid work and to fulfil their caring responsibilities. An overriding concern of the research is how workplaces, government policy and community attitudes can be changed to foster a better and more supportive environment for workers who are caring. The research points to the need to change workplace policies and organisational cultures to confer legitimacy on the felt obligation and responsibility to care for older relatives. The responsibility of employers are explored and the knowledge, competencies and time management skills demonstrated in unpaid caring work are found to match the 'skill get' generally required of a modern manager, thereby offering important lessons for employer and employee alike.

In 1997 Nancy de Vries accepted the Apology from the Parliament of New South Wales on behalf of all the Indigenous children who had been taken from their families and communities throughout the state's history. It was an honour that recognised she had the courage to speak about a life of pain and loneliness. Nancy tells her story in an unusual and challenging collaboration with Dr Gaynor Macdonald (Anthropology) of the University of Sydney, Associate Professor Jane Mears (Social Policy) of the University of Western Sydney and Dr Anna Nettheim (Anthropology) of the University of Sydney.