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Genomic Data Sharing: Case Studies, Challenges, and Opportunities
for Precision Medicine provides a comprehensive overview of current
and emerging issues in genomic data sharing. In this book,
international leaders in genomic data examine these issues
in-depth, offering practical case studies that highlight key
successes, challenges and opportunities. Sections discuss the
eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank,
Marshfield Clinic Biobank, Minnesota Authorization, Rochester
Epidemiology Project, NIH sponsored biobanks, GINA, and Global
Alliance for Genomics and Health (GA4GH). In addition to these
perspectives from the frontlines, the book also provides succinct
overviews of ethical, legal, social and IT challenges. Clinician
investigators, clinicians affiliated with academic medical centers,
policymakers and regulators will also gain insights that will allow
them to navigate the increasingly complex ethical, social and
clinical landscape of genomic data sharing.
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