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This important book proposes revising the current informed consent
protocol for predictive genetic testing to reflect the trend toward
patient-centered medicine. Emphasizing the predictive aspect of
testing, the author analyzes the state of informed consent
procedure in terms of three components: comprehension of risk
assessment, disclosure to select appropriate treatment, and
voluntariness. The book's revised model revisits these
cornerstones, restructuring the consent process to allow for
expanded comprehension time, enhanced patient safety, greater
patient involvement and autonomy, and reduced chance of coercion by
family or others. A comparison of the current and revised versions
and case studies showing the new model in real-world applications
add extra usefulness to this resource. Included in the coverage:
The science behind PGT. Understanding genetic risks and
probability. The history of informed consent. Revised model of
informed consent: comprehension, disclosure, voluntariness, patient
safety. Applications of the model in DTC and pleiotropic genetic
testing. Implementation of the revised model, and assessing its
effectiveness. A milestone in the bioethics literature, Informed
Consent in Predictive Genetic Testing will be of considerable
interest to genetic counselors, medical and bioethicists, and
public health professionals.
This important book proposes revising the current informed consent
protocol for predictive genetic testing to reflect the trend toward
patient-centered medicine. Emphasizing the predictive aspect of
testing, the author analyzes the state of informed consent
procedure in terms of three components: comprehension of risk
assessment, disclosure to select appropriate treatment, and
voluntariness. The book's revised model revisits these
cornerstones, restructuring the consent process to allow for
expanded comprehension time, enhanced patient safety, greater
patient involvement and autonomy, and reduced chance of coercion by
family or others. A comparison of the current and revised versions
and case studies showing the new model in real-world applications
add extra usefulness to this resource. Included in the coverage:
The science behind PGT. Understanding genetic risks and
probability. The history of informed consent. Revised model of
informed consent: comprehension, disclosure, voluntariness, patient
safety. Applications of the model in DTC and pleiotropic genetic
testing. Implementation of the revised model, and assessing its
effectiveness. A milestone in the bioethics literature, Informed
Consent in Predictive Genetic Testing will be of considerable
interest to genetic counselors, medical and bioethicists, and
public health professionals.
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