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This educational workbook helps people who build compassionate
relationships with dying people. Accompanied by its trainer's
guide, it presents a comprehensive, sequential learning program for
caregivers in non-medical capacities covering everything from
self-understanding to spiritual issues, listening skills and
expressive activities, developing the skills, awareness and
resilience needed for this privileged and sensitive role. The
program includes a variety of learning experiences, including large
and small group activities, discussion, close reading, creative
writing, self exploration, and skill development and practice. This
is an invaluable resource for small groups of individuals who wish
to volunteer in hospice or palliative care settings. A copy of the
guide for trainers is included in each pack of workbooks, and is
also freely available online. 'The best resource I have seen to
guide teachers and learners in this complex training process. I
predict that those of you who try it with your staffs and trainees
will find that it bears fruit both for your patients and their
families, but also for the sustenance and personal development of
the staff members themselves.' Timothy Quill, M.D., in his Foreword
Narrative medicine has developed an identity already. Clinicians of
many disciplines are being summoned to a practice that recognizes
patients by receiving their accounts of self. Starting from
different positions, the four authors have converged in a strong
and shared commitment to narrative health care. They conceptualize
narrative health care practices within frameworks derived from the
social sciences and psychology, and, to a lesser degree,
phenomenology and autobiographical theory. They relate the
development of narrative medicine to relationship-centered care,
patient-centered care, and complex responsive process of relating
theory, positing that narrative medicine can help clinicians to
develop the skills required to practice relationship-centered care.
The book details - with exercises, resource texts, and abundant
scholarly apparatus - how these skills can be developed and
strengthened. This work will change health care. Because of its
scholarly rigor, its multi-voiced sources, and its highly practical
features (lists, activities, key ideas and key references, primary
texts written by health care professionals and patients), this work
will be a guide in the field for those who practice medicine or
nursing or social work. The book establishes that there is a field
to be practised, a need to practise it, and a means to develop the
wherewithal to do so.
'Today, there exists a robust body of work connecting narrative
theory and practice with medical theory, practice, teaching, and
research. Taken together, what is particularly interesting about
these works is that they portray narrative healthcare as both a
philosophy of care and a set of skills - ' John D Engel, Lura L
Pethtel and Joseph Zarconi, in the Preface This inspiring
collection of narrative portraits details the career paths of
physicians and nurses who figure prominently in the realms of
narrative and relationship-centered healthcare. Each narrative
describes the healthcare practitioner's early decision process for
choosing their career and follows with a trajectory of events and
work situations that brought each person to their present position.
They offer a unique view from both a personal and a professional
perspective. The collection of narrative portraits provides
students, residents, and practicing health professionals a window
into the possibilities for constructing professional lives that are
oriented to service in ways that are fulfilling, energizing, and
creative. The editors have made an important contribution to
advancing the practice of narrative and relationship-centered
medicine. They invite you to listen for the truths of your own
story as you hear the voices of colleagues speak from the pages in
your hand. Reflecting on the ultimate concerns that move you will
enable you to more fully inhabit your own life story and become
more authentic and vital as you heal others. Mark L Savickas, in
the Foreword
To many practitioners, managers and patients, US primary care is in
crisis. Primary care physicians are often overworked and
undervalued, and both patients and care providers can feel locked
into structures that lack compassion and are unfit for their
intended purposes. Healthcare reforms aim to resolve the situation,
but changes may take years to deliver and are contingent on
numerous outside factors. What steps are within care providers'
power to take now? This book lays out a course to deliver
compassionate care, quality, and efficiency that - unlike many
current patient-centred medical home initiatives in the US - does
not require outside funding. After reflecting on avoidable problems
and harms in primary care, the book offers stories of hope from
innovative clinicians across the US before presenting ten
practical, deliverable steps to lift primary care provision from
'poor' or 'mediocre' to 'great'. This book will be of interest to
practicing family physicians and general internists, but will also
be useful reading for health system leaders, healthcare insurance
purchasers and insurance company executives.
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