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Selected as a Doody's Core Title for 2022! The only book on the
market to cover palliative care for both adults and children,
Pediatric and Adult Palliative Care and Support Oncology offers an
easy-to-read, interdisciplinary approach to supportive oncology as
well as end-of-life care. Ideal for oncologists, residents,
fellows, nurse practitioners, and physician assistants, the fifth
edition provides important updates for conventional topics while
also featuring several brand new chapters. Covering everything from
dermatologic toxicity of cancer treatment to running family
meetings for setting goals of care, this unique title is a source
of both help and inspiration to all those who care for patients
with cancer. Offers an interdisciplinary approach to supportive
oncology, providing practical ways to implement integrated care to
patients and families who live with cancer. Covers common issues
such as pain, fatigue, nausea, and vomiting-both the physical
symptoms and the psychosocial/spiritual effects-helping the reader
understand practical ways of integrating curing and healing.
Features entirely new chapters covering emerging topics in the
field of palliative care, such as cannabinoids, survivorship issues
in pediatrics, and cancer genetics. Provides expert guidance from
contributing authors in medial, radiation, and surgical oncology,
as well as nursing, neurology, psychiatry, anesthesiology, and
pharmacology. Enrich Your eBook Reading Experience Read directly on
your preferred device(s), such as computer, tablet, or smartphone.
Easily convert to audiobook, powering your content with natural
language text-to-speech.
The Health Resources and Services Administration (HRSA) of the
United States Department of Health and Human Services has as its
mission the improvement of access to health care and services for
underserved and vulnerable populations. HRSA accomplishes this
mission by partnering with community-based organizations in the
delivery of health and social services, with academic health
centers in the education of health professionals, and with State
and local health departments in the areas of prevention, public
health promotion and health care delivery. Improved quality of care
and quality of life are the goals of the programs and initiatives
of HRSA. To that end HRSA's HIV/AIDS Bureau has embarked on the
publication of A Clinical Guide to Supportive and Palliative Care
for HIV/AIDS. Through the work of visionaries in the fields of
HIV/AIDS and palliative care, we conclude that excellent HIV care
can be provided by integrating the principles and framework of
palliative care into the delivery of care and services to people
living with HIV/AIDS, throughout the continuum of illness. This
integration of services holds the promise of patient and
family-centered care that is proactive in addressing the multitude
of issues with which patients are challenged. With this volume we
seek to expand the definition of palliative care and to realize
palliative care's full potential to improve the quality of care and
the quality of life of those living with HIV/AIDS. The HIV/AIDS
Bureau, through its Working Group on Palliative Care in HIV, has
set forth the following working definition: Palliative care is
patient- and family-centered care. It optimizes quality of life by
active anticipation, prevention, and treatment of suffering. It
emphasizes use of an interdisciplinary team approach throughout the
continuum of illness, placing critical importance on the building
of respectful and trusting relationships. Palliative care addresses
physical, intellectual, emotional, social, and spiritual needs. It
facilitates patient autonomy, access to information, and choice.
Palliative care is complementary care, not alternative care, and
therefore should not be provided only when disease-directed therapy
fails or is unavailable. It is a mistake to adopt a palliative
perspective and approach only at the last stages of illness. One
need only reflect on the pain associated with receiving a first HIV
diagnosis or upon the psychological and spiritual suffering that
are the substrates of substance abuse and other behaviors exposing
individuals to HIV, to realize the importance of using palliative
care principles at all points along the course of this illness.
Providers should focus their attention on comfort, relief of
suffering, and quality of life throughout the course of HIV
disease. The central role of medication adherence is not to be
underestimated in stabilizing the course of disease, but other
factors can be equally important in optimizing clinical outcomes.
These factors include a wide range of hard-to-control socioeconomic
as well as personal characteristics: an understanding of the
disease process; empowerment in relation to personal health; a safe
place to live; freedom from pain and distressing symptoms; adequate
nutrition; treatment for substance abuse, depression and other
mental illness; hope; adequate help of friends, family and other
caregivers, especially when functional status is diminished and
disease progression is ongoing. These challenges can be met
successfully by using a palliative care framework to approach the
patient, providers, caregivers, family, loved ones, and the health
care system. This manual is organized to address the many aspects
of palliative care that are key in caring for the person living
with HIV and AIDS. A wealth of expertise and experience in the
areas of HIV and palliative care has provided a unique document
that expands the realms of both disciplines.
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