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Observing Bioethics examines the history of bioethics as a
discipline related not only to modern biology, medicine, and
biotechnology, but also to the core values and beliefs of American
society and its courts, legislatures, and media. The book is
written from the perspective of two social scientists--a
sociologist of medicine(Renee C. Fox) and a historian of medicine
(Judith P. Swazey)--who have participated in bioethics since the
emergence of this multidisciplinary field more than 30 years ago.
Fox and Swazey draw on first-hand observations and experiences in
a variety of American bioethical settings; face-to-face interviews
with first- and second-generation figures in the genesis and early
unfolding of bioethics; a detailed examination of the theatrical
media coverage of what was considered to be a banner event in the
annals of bioethics (the creation and birth of the cloned sheep,
Dolly); case studies of how bioethics has internationally
developed; and a large corpus of primary documents and secondary
source materials.
While recognizing the intellectual, moral, and sociological
importance of American bioethics, Fox and Swazey are critical of
its characteristics. Foremost among these are what they identify as
the problems of thinking socially, culturally, and internationally
in American bioethics; the 'tenuous interdisciplinarity' of the
field; and the troubling extent to which the 'culture wars' have
penetrated bioethics.
This book will appeal to a wide range of doctors, scientists, and
academics who are involved in the history and sociology of
bioethics.
The title of this profound work conveys the bold, uncertain, and
often dangerous adventure in which medical professionals and their
organ transplant and dialysis patients are engaged. Built around a
series of case studies, The Courage to Fail is the product of
collaborative first-hand research concerned with various social
phenomena generated by transplantation and dialysis. The authors
examine the individuals involved and the workings and atmosphere of
some of the medical centers in which these forms of therapy have
been developed. They examine "gift-exchange" dimensions of
transplantation: the transcendent and tyrannical aspects of the
"gift of life" that transplants entail for donors and
recipients-and for medical professionals as well. They also analyze
the dilemma of uncertainty inherent in medicine, which occurs with
particular force in the development of such experimental
techniques.Since publication of the original edition, the authors
have continued to follow social and medical developments
surrounding organ transplants and dialysis. In their new
introduction, they discuss transplantation as a gift of life, how
and when death occurs, efforts to procure more organs, and organ
replacement and issues of equity. This book will be of interest to
physicians, medical students, medical sociologists, and anyone
interested in the history of and issues surrounding organ
transplantation and dialysis.
The title of this profound work conveys the bold, uncertain, and
often dangerous adventure in which medical professionals and their
organ transplant and dialysis patients are engaged. Built around a
series of case studies developed through years of first-hand
ethnographic research, The Courage to Fail is the product of
collaborative first-hand research concerned with various social
phenomena generated by transplantation and dialysis and also by the
development and deployment of an artificial heart. The authors
examine the individuals involved and the workings and atmosphere of
some of the medical centers in which these forms of therapy have
been developed. They examine "gift-exchange" dimensions of
transplantation: the transcendent and tyrannical aspects of the
"gift of life" that transplants entail for donors and recipients --
and for medical professionals as well. They also analyze the
dilemma of uncertainty inherent in medicine, which occurs with
particular force in the development of such experimental
techniques.
Since publication of the original edition, the authors have
continued to follow social and medical developments surrounding
organ transplants and dialysis. In their new introduction, they
discuss transplantation as a gift of life, how death is defined and
when it occurs, efforts to procure more organs, and organ
allocation and issues of equity. This book will be of interest to
physicians, medical students, medical sociologists, and anyone
interested in the history of and issues surrounding organ
replacement.
The developments that have occurred in the field of organ transplantation during the 1980s and early 1990s, and the simultaneous rise and fall of the Jarvik-7 artificial heart are the subject of this vividly written and absorbing new volume. In Spare Parts, fascinating, interconnected stories of organ transplantation and the artificial heart are recounted in an interpretive framework that explores the vision of the "replaceable body." Themes of uncertainty, gift exchange, and the allocation of scarce material and non-material resources underscore a discussion that openly examines the escalating ardor about the goodness of repairing and remaking people with transplanted organs. Likewise, the stories open questions of life and death, identity, and solidarity. This important book offers insights into the symbolic and anthropomorphic meanings associated with the human body and its organs, and into the ways that medical professionals come to terms with the concomitant aspects of transferring vital body parts. Both artificial and donor organs, as well as the process of transplantation, are the subject of a thoughtful discussion which touches on the medical myths and rituals that they generate. Chronologically, Spare Parts begins where the authors' previous book, The Courage to Fail, leaves off. More than a sequel, however, this work reflects their increasingly troubled and critical reactions to the expansion of organ replacement. Likely to be controversial, this book is must reading for bioethicists, medical sociologists and anthropologists, health-care lawyers, planners and administrators, nurses and physicians, medical journalists and science writers, and concerned lay readers.
The essays in this volume pay tribute to the achievements of RenUe
C. Fox in the fields of medicine and sociology. Many of the
contributors are Fox's colleagues and former students from
medicine, sociology, nursing, and bioethics. The title--Society and
Medicine--reflects the leitmotif in Fox's work: her studies of and
teaching about the nature of medicine and medical research; the
training and work of their practitioners; the interrelationships
between medicine and the societies and cultures of which it is a
part; and, above all, the moral and spiritual dimensions of the
healing arts.
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