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Encompassing a wide range of perspectives on childhood impairment
and its social implications, Growing Up with Disability adopts a
child-centered approach, including interviews with disabled young
people and their own writing to enable their voices to be heard.
Pre-school and school age children describe their behavior and
feelings within their own families, substitute families and
residential homes. The book explores how such children can be best
protected, and how their quality of life can be improved. Using the
social model of disability which identifies the barriers to
inclusion faced by disabled people, contributors give examples of
progressive practice, and examine the aspirations of young disabled
people, their friendships, and how they come to terms with
adolescence and the transition to adulthood.
In the wake of the profound changes in policy and practice around
caring over the past ten years, this volume takes a fresh look at
the social and legal status of carers. Demonstrating the scope and
diversity of 'caring', the contributors highlight the positive
aspects of caring and the interdependence of many caring
relationships but also broach the sensitive and complex subject of
`poor' care and the importance of identifying and meeting the needs
of 'hidden carers'. Arguing that policy and practice must take
account of both carers' and users' interests, the contributors
re-evaluate the existing role of carers in developing new ideas in
the planning and delivery of their services. Each of the book's
chapters points to the future and looks at alternative and
innovative ways forward in relation to thinking, policy and
practice. This will make essential reading for social work and
social science academics and students; professionals in the
statutory, voluntary and independent sectors looking after the
interests of carers; health and social care practitioners; nurses
and care agency workers.
Drawing on one-to-one guided conversations with disabled children
and follow-up interviews with their parents and siblings, this
volume takes an in-depth look at the effects of disability on
disabled children. Approaching this neglected subject through the
disabled child's perspective, it considers: * disabled children's
understanding of disability * the ways in which children negotiate
the experience of disability in their everyday lives * children's
perceptions of their relationships with professionals and their
knowledge and views of service provision * children's aspirations
for the future and their views on the type of support which might
help achieve them * siblings' perceptions of the effects on them of
having a disabled brother or sister. Informed by the social model
of disability, Clare Connors and Kirsten Stalker identify and draw
out the implications of their findings for social work and health
services. Illustrating effective ways of communicating directly
with disabled children, this will prove an invaluable resource for
academics, policy makers and practitioners working with disabled
children in health and social care settings.
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