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Here is a thoughtful new book for professionals who assist persons
afflicted with neuromuscular disorders to help them and their
families adapt to lifestyle changes accompanying the onset of these
disorders. Health care professionals provide strategies to maintain
the psychosocial well-being of children and adults with
neuromuscular disorders which, in addition to physical damage, also
assault the sense of self and challenge the individual's ability to
move and communicate. Chapters describe the psychosocial aspects of
a variety of neuromuscular diseases such as Duchenne and myotonic
muscular dystrophy, multiple sclerosis, amyotrophic lateral
sclerosis, Friedeich's ataxia, and Charcot-Marie-Tooth disease. The
distinctive characteristics of each disease are examined with
special attention given to the natural history, treatment,
management, and psychosocial issues of the specific disorder.
Beyond the clinical and research importance of Muscular Dystrophy
and Other Neuromuscular Diseases, it also addresses the anxiety,
doubts, and questions felt by patients with chronic progressive
disabilities and their families. This helpful guide is unique in
the way it features the interaction of professionals in the social
services, psychology, religion, and various medical specialties in
the care and treatment of these patients. Professionals in all of
these disciplines, as well as the patients and families afflicted
by these disorders, will benefit from this valuable resource.
Here is a thoughtful new book for professionals who assist persons
afflicted with neuromuscular disorders to help them and their
families adapt to lifestyle changes accompanying the onset of these
disorders. Health care professionals provide strategies to maintain
the psychosocial well-being of children and adults with
neuromuscular disorders which, in addition to physical damage, also
assault the sense of self and challenge the individual's ability to
move and communicate. Chapters describe the psychosocial aspects of
a variety of neuromuscular diseases such as Duchenne and myotonic
muscular dystrophy, multiple sclerosis, amyotrophic lateral
sclerosis, Friedeich's ataxia, and Charcot-Marie-Tooth disease. The
distinctive characteristics of each disease are examined with
special attention given to the natural history, treatment,
management, and psychosocial issues of the specific disorder.
Beyond the clinical and research importance of Muscular Dystrophy
and Other Neuromuscular Diseases, it also addresses the anxiety,
doubts, and questions felt by patients with chronic progressive
disabilities and their families. This helpful guide is unique in
the way it features the interaction of professionals in the social
services, psychology, religion, and various medical specialties in
the care and treatment of these patients. Professionals in all of
these disciplines, as well as the patients and families afflicted
by these disorders, will benefit from this valuable resource.
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