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As people are living longer on average than ever before, the number
of those with dementia will increase. Because many will live a
considerable time at home with their diagnosis, we need to know
more about the ways people can adapt to and learn to live with
dementia in their everyday lives. Lars-Christer Hyden argues in
this book that to do so will involve re-imagining what dementia
really is and what it can mean to the afflicted and their loved
ones. One of the most important everyday opportunities for sharing
experiences is the simple act of storytelling. But when someone
close to you gradually loses the ability to tell stories and
cherish the shared history you have together, this is seen as a
threat to the relationship, to the feeling of belonging together,
and to the identity of the person diagnosed. Therefore, learning
about how people with dementia can participate in storytelling
along with their families and friends helps to sustain those
relationships and identities. In Entangled Narratives, Hyden not
only emphasizes the possibilities that are inherent in
collaborative storytelling, but instructs professionals and
otherwise healthy relatives to learn how to effectively listen and,
ultimately, re-imagine their patients and loved ones as
collaborative meaning-makers in their lives.
This book is available as open access through the Bloomsbury Open
Access programme and is available on www.bloomsburycollections.com.
Narrative research has become a catchword in the social sciences
today, promising new fields of inquiry and creative solutions to
persistent problems. This book brings together ideas about
narrative from a variety of contexts across the social sciences and
synthesizes understandings of the field. Rather than focusing on
theory, it examines how narrative research is conducted and
applied. It operates as a practical introductory guide, basic
enough for first-time researchers, but also as a window onto the
more complex questions and difficulties that all researchers in
this area face. The authors guide readers through current debates
about how to obtain and analyse narrative data, about the nature of
narrative, the place of the researcher, the limits of researcher
interpretations, and the significance of narrative work in applied
and in broader political contexts.
This collection of essays examines the interrelations between
illness, disability, health, society, and culture. The contributors
examine how "narratives" have emerged and been utilized within
these areas to help those who have experienced d injury,
disability, dementia, pain, grief, or psychological trauma to
express their stories. Encompassing clinical case studies,
ethnographic field studies and autobiographical case studies,
Health, Illness and Culture offers a broad overview and critical
analysis of the present state of "illness narratives" within the
fields of health and social welfare.
Traditionally, the most preferred social research methods in
dementia studies have been interviews, focus groups and
non-participant observations. Most of these methods have been used
for a long time by researchers in other social research fields, but
their application to the field of dementia studies is a relatively
new phenomenon. A ground-breaking book, Social Research Methods in
Dementia Studies shows researchers how to adapt their methods of
data collection to address the individual needs of someone who is
living with dementia. With an editorial team that includes Ann
Johnson, a trained nurse and person living with dementia, this
enlightening volume mainly draws its contents from two
interdisciplinary social research teams in dementia, namely the
Center for Dementia Research [CEDER] at Linkoeping University in
Norrkoeping, Sweden and the Dementia and Ageing Research Team
[DART] at The University of Manchester in Manchester, UK. Case
examples are shared in each of the main chapters to help ground the
social research method(s) in a real-life context and provide
direction as to how learning can be applied to other settings.
Chapters also contain key references and recommended reading. This
volume will appeal to undergraduate and postgraduate students, as
well as postdoctoral researchers, interested in fields such as:
Research Methods, Qualitative Methods and Dementia Studies.
Although the use of new health technologies in healthcare and
medicine is generally seen as beneficial, there has been little
analysis of the impact of such technologies on people's lives and
understandings of health and illness. This ground-breaking book
explores how new technologies not only provide hope for cure and
well-being, but also introduce new ethical dilemmas and raise
questions about the 'natural' body. Focusing on the ways new health
technologies intervene into our lives and affect our ideas about
normalcy, the body and identity, Medical Technologies and the Life
World explores: how new health technologies are understood by lay
people and patients how the outcomes of these technologies are
communicated in various clinical settings how these technologies
can alter our notions of health and illness and create 'new
illness'. Written by authors with differing backgrounds in
phenomenology, social psychology, social anthropology,
communication studies and the nursing sciences, this sensational
text is essential reading for students and academics of medical
sociology, health and allied studies, and anyone with an interest
in new health technologies.
Traditionally, the most preferred social research methods in
dementia studies have been interviews, focus groups and
non-participant observations. Most of these methods have been used
for a long time by researchers in other social research fields, but
their application to the field of dementia studies is a relatively
new phenomenon. A ground-breaking book, Social Research Methods in
Dementia Studies shows researchers how to adapt their methods of
data collection to address the individual needs of someone who is
living with dementia. With an editorial team that includes Ann
Johnson, a trained nurse and person living with dementia, this
enlightening volume mainly draws its contents from two
interdisciplinary social research teams in dementia, namely the
Center for Dementia Research [CEDER] at Linkoeping University in
Norrkoeping, Sweden and the Dementia and Ageing Research Team
[DART] at The University of Manchester in Manchester, UK. Case
examples are shared in each of the main chapters to help ground the
social research method(s) in a real-life context and provide
direction as to how learning can be applied to other settings.
Chapters also contain key references and recommended reading. This
volume will appeal to undergraduate and postgraduate students, as
well as postdoctoral researchers, interested in fields such as:
Research Methods, Qualitative Methods and Dementia Studies.
Narrative research has become a catchword in the social sciences
today, promising new fields of inquiry and creative solutions to
persistent problems. This book will bring together ideas about
narrative from a variety of contexts across the social sciences and
synthesizes understandings of the field. Rather than focusing on
theory, the book will examine how narrative research is conducted
and applied. It will operate as an introductory guide, simple
enough for the beginner, but also as a window onto the more complex
questions and difficulties that all researchers in this area face.
It will guide readers through current debates not just about how to
obtain and analyse narrative data, but about the nature of
narrative, the place of the researcher, the limits of researcher
interpretations, and the significance of narrative work in applied
and in broader political contexts.
Although the use of new health technologies in healthcare and
medicine is generally seen as beneficial, there has been little
analysis of the impact of such technologies on people's lives and
understandings of health and illness. This ground-breaking book
explores how new technologies not only provide hope for cure and
well-being, but also introduce new ethical dilemmas and raise
questions about the 'natural' body. Focusing on the ways new health
technologies intervene into our lives and affect our ideas about
normalcy, the body and identity, Medical Technologies and the Life
World explores: how new health technologies are understood by lay
people and patients how the outcomes of these technologies are
communicated in various clinical settings how these technologies
can alter our notions of health and illness and create 'new
illness'. Written by authors with differing backgrounds in
phenomenology, social psychology, social anthropology,
communication studies and the nursing sciences, this sensational
text is essential reading for students and academics of medical
sociology, health and allied studies, and anyone with an interest
in new health technologies.
Recognizing the existence of the subculture of disability is an
important part of an interdisciplinary field reborn in the 1980s.
These ten essays cover some of the most dynamic ranges of study and
largely work within the societal model, although some touch on
appropriation of disability and the medical model. They begin with
a consideration of the passage from the retold narrative about
wellness and not-wellness to the performed story, then comment
about dialog on trauma, the importance of broken and vicarious
voices in narrative, the instance of neurotrauma and the associated
response to catastrophe, the stories that do not end in a return to
"normalcy," silence and talk about HIV, narratives of death by
survivors and mourners, the case of contested illness and the
traditional fight against the medical, the narratives compelled by
emotions behind breaking up, and the strange promise of dementia.
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