As people are living longer on average than ever before, the number of those with dementia will increase. Because many will live a considerable time at home with their diagnosis, we need to know more about the ways people can adapt to and learn to live with dementia in their everyday lives. Lars-Christer Hyden argues in this book that to do so will involve re-imagining what dementia really is and what it can mean to the afflicted and their loved ones. One of the most important everyday opportunities for sharing experiences is the simple act of storytelling. But when someone close to you gradually loses the ability to tell stories and cherish the shared history you have together, this is seen as a threat to the relationship, to the feeling of belonging together, and to the identity of the person diagnosed. Therefore, learning about how people with dementia can participate in storytelling along with their families and friends helps to sustain those relationships and identities. In Entangled Narratives, Hyden not only emphasizes the possibilities that are inherent in collaborative storytelling, but instructs professionals and otherwise healthy relatives to learn how to effectively listen and, ultimately, re-imagine their patients and loved ones as collaborative meaning-makers in their lives.

This book is available as open access through the Bloomsbury Open Access programme and is available on www.bloomsburycollections.com. Narrative research has become a catchword in the social sciences today, promising new fields of inquiry and creative solutions to persistent problems. This book brings together ideas about narrative from a variety of contexts across the social sciences and synthesizes understandings of the field. Rather than focusing on theory, it examines how narrative research is conducted and applied. It operates as a practical introductory guide, basic enough for first-time researchers, but also as a window onto the more complex questions and difficulties that all researchers in this area face. The authors guide readers through current debates about how to obtain and analyse narrative data, about the nature of narrative, the place of the researcher, the limits of researcher interpretations, and the significance of narrative work in applied and in broader political contexts.

This collection of essays examines the interrelations between illness, disability, health, society, and culture. The contributors examine how "narratives" have emerged and been utilized within these areas to help those who have experienced d injury, disability, dementia, pain, grief, or psychological trauma to express their stories. Encompassing clinical case studies, ethnographic field studies and autobiographical case studies, Health, Illness and Culture offers a broad overview and critical analysis of the present state of "illness narratives" within the fields of health and social welfare.

Recognizing the existence of the subculture of disability is an important part of an interdisciplinary field reborn in the 1980s. These ten essays cover some of the most dynamic ranges of study and largely work within the societal model, although some touch on appropriation of disability and the medical model. They begin with a consideration of the passage from the retold narrative about wellness and not-wellness to the performed story, then comment about dialog on trauma, the importance of broken and vicarious voices in narrative, the instance of neurotrauma and the associated response to catastrophe, the stories that do not end in a return to "normalcy," silence and talk about HIV, narratives of death by survivors and mourners, the case of contested illness and the traditional fight against the medical, the narratives compelled by emotions behind breaking up, and the strange promise of dementia.

Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linkoeping University in Norrkoeping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.

Although the use of new health technologies in healthcare and medicine is generally seen as beneficial, there has been little analysis of the impact of such technologies on people's lives and understandings of health and illness. This ground-breaking book explores how new technologies not only provide hope for cure and well-being, but also introduce new ethical dilemmas and raise questions about the 'natural' body. Focusing on the ways new health technologies intervene into our lives and affect our ideas about normalcy, the body and identity, Medical Technologies and the Life World explores: how new health technologies are understood by lay people and patients how the outcomes of these technologies are communicated in various clinical settings how these technologies can alter our notions of health and illness and create 'new illness'. Written by authors with differing backgrounds in phenomenology, social psychology, social anthropology, communication studies and the nursing sciences, this sensational text is essential reading for students and academics of medical sociology, health and allied studies, and anyone with an interest in new health technologies.

Although the use of new health technologies in healthcare and medicine is generally seen as beneficial, there has been little analysis of the impact of such technologies on people's lives and understandings of health and illness. This ground-breaking book explores how new technologies not only provide hope for cure and well-being, but also introduce new ethical dilemmas and raise questions about the 'natural' body. Focusing on the ways new health technologies intervene into our lives and affect our ideas about normalcy, the body and identity, Medical Technologies and the Life World explores: how new health technologies are understood by lay people and patients how the outcomes of these technologies are communicated in various clinical settings how these technologies can alter our notions of health and illness and create 'new illness'. Written by authors with differing backgrounds in phenomenology, social psychology, social anthropology, communication studies and the nursing sciences, this sensational text is essential reading for students and academics of medical sociology, health and allied studies, and anyone with an interest in new health technologies.

Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linkoeping University in Norrkoeping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.

Narrative research has become a catchword in the social sciences today, promising new fields of inquiry and creative solutions to persistent problems. This book will bring together ideas about narrative from a variety of contexts across the social sciences and synthesizes understandings of the field. Rather than focusing on theory, the book will examine how narrative research is conducted and applied. It will operate as an introductory guide, simple enough for the beginner, but also as a window onto the more complex questions and difficulties that all researchers in this area face. It will guide readers through current debates not just about how to obtain and analyse narrative data, but about the nature of narrative, the place of the researcher, the limits of researcher interpretations, and the significance of narrative work in applied and in broader political contexts.

Traditionally, dementia has been defined primarily in terms of loss: loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as care givers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an 'empty vessel' has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia. With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through in-depth discussion of what people with dementia and their loved ones can do, and how they can actively make use of remaining resources. Topics covered include: - How to involve people with dementia in collaborative activities in the home, and the benefits this has on their cognitive and communicative abilities. - Ways in which identity can be presented and preserved through storytelling, and the impact on identity of moving from home into residential care. - The benefits of a 'citizenship' approach to dementia: of recognising that a person living with dementia is an active agent, with the right to self-determination and the ability to exert power over their own lives. This important new contribution to the dementia debate is truly enlightening reading for students across the full range of health and social care disciplines, and offers a fresh perspective to existing practitioners and those who care for people with dementia.