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The vast majority of care provided to adults and elders with
chronic illness is given in the home, most often by family members.
The caregiver's role is daunting; caregiving is often referred to
as a 'career,' requiring long hours and arduous tasks. Primary
caregivers show higher rates of morbidity and mortality, and
caregiving is a major source of stress and burden to caregiving
families. Presently, very little support is available to caregivers
from either State or Federal agencies. However, awareness of this
worsening problem is growing among health professionals and policy
makers. The Spectrum of Family Caregiving for Adults and Elders
with Chronic Illness is written for individuals in the helping
professions who are in roles that interface with or serve family
caregivers who are supporting an adult or elder with a chronic
condition. The volume includes eight disease-specific chapters
written by experts from various disciplines. Each discusses the
caregiving role and includes a thorough review of the literature on
the characteristics of caregivers and care-recipients, including
related care needs, issues, and challenges unique to that chronic
illness. Chapters also review the extant literature on caregiver
interventions. An Evidence Table is included in each of these
chapters so that the reader can easily judge the quality of
evidence supporting the intervention studies. Finally, each chapter
includes two case studies describing common problems encountered by
caregivers, along with descriptions of interventions used to
address these problems. The final chapter summarizes the state of
the science on caregiving roles and caregiver interventions and
discusses the most relevant challenges and barriers faced by
today's caregivers and caregiver advocates. This book will be
valuable to clinicians and those in the helping professions, as
well as academics and researchers with an interest in the study of
family caregiving and caregiver interventions, and to health
administrators, public officials, and policy makers concerned with
chronic illness care and management.
Older adults increasingly rely on family members or friends (i.e.,
informal caregivers) for needed care and support as they age.
Family caregivers typically assume their caregiving role willingly
and reap personal fulfilment from helping a loved one, developing
new skills, and strengthening family relationships. For these
benefits, however, caregivers often sacrifice their own health and
well-being. Depression, anxiety, poor physical health, and
compromised immune function are more common among family caregivers
than in adults not providing such care. The REACH OUT Caregiver
Support Program offers a multi-component, tailored, and flexible
intervention for caregivers of people with dementia that is focused
on the evidence-based therapeutic strategy of problem solving. This
practical volume is designed to guide clinicians through the
process of implementing REACH OUT (Resources for Enhancing
Alzheimer's Caregiver Health: Offering Useful Treatments) and to
provide them with necessary tools to share with caregivers, with
the goal of enhancing caregiver physical and mental health. Five
common risk areas (home safety, caregiver health, social support,
challenging behaviors, and emotional well-being) are described in
the manual, and interventions are outlined that respect the nuances
of each risk area. By beginning with an individualized risk
assessment and being flexible to the needs and issues of the
caregiver, the REACH OUT intervention helps clinicians identify
risk areas and provides caregivers with tailored action plans to
reduce risk and promote well-being.
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