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You've read the history and the background, now meet the families!
This companion book to Meeting Families Where They Are traces the
advocacy journeys of 12 caregivers across a range of racial,
ethnic, social, disability, economic, and family identities. The
stories reflect the unique lives, histories, and needs of each
family, as well as the different approaches they employ to meet the
needs of their children. Caregivers indicate when they began to
advocate; describe how they continue their efforts across schools,
medical offices, therapies, communities, and virtual spaces; and
discuss how they adapt to changing social and health climates and
educational delivery modes. They also share their collective wisdom
to assist other parents who are new to the advocacy platform or are
feeling discouraged with the process. This is must-reading for
family members, teachers, administrators, health care personnel,
and everyone invested in creating a culture of respect, love, and
understanding.Book Features: Emphasizes how families have resisted
the deficit-based view of their children while still utilizing
systems of support. Identifies gaps and challenges across multiple
systems, as well as "what's working." Incorporates the fields of
special education and disability studies in education. Uses the
framework of DisCrit to explore how disability and other social
identities operate in tandem, examining concepts such as power,
access, privilege, and barriers. Positions caregivers as experts in
their children's lives, illustrating how they advocate for their
children, teens, and young adults. Takes a deep dive into the
nuances of generational, cultural, organizational, and geographical
factors that impact how caregivers advocate. Resists approaches
that typically involve professionals dictating what families need,
centering instead on a collaborative model that includes families
and professionals.
This book presents an in-depth discussion of how human disability
and parental advocacy have been constructed in American society,
including recommendations for a more authentically inclusive vision
of parental advocacy. The authors provide a cultural-historical
view of the conflation of racism, classism, and ableism that have
left a deeply entrenched stigma-one that positions children with
disabilities and children of color as less valuable than others. To
redress these inequities, the authors offer a working model of
co-constructed advocacy designed to benefit all families. Because
advocacy is not a "one size fits all" endeavor, the authors propose
meeting families where they are and learning their strengths and
needs, while preparing and repositioning families to empower
themselves.Book Features: Takes a cultural-historical view that
explores the reasons why individuals with disabilities are so
stigmatized. Shows how the intersection of different stigmatized
identity markers, such as poverty, race, and language, have been
woven into negative interpretations of "difference." Celebrates the
history of parent advocacy in the United States since World War II.
Examines how social and racial privilege have dictated which parent
voices are heard. Proposes collaborative approaches that can
produce more authentic and more representative advocacy. Explores
the motivations and purposes that drive parent advocacy.
You've read the history and the background, now meet the families!
This companion book to Meeting Families Where They Are traces the
advocacy journeys of 12 caregivers across a range of racial,
ethnic, social, disability, economic, and family identities. The
stories reflect the unique lives, histories, and needs of each
family, as well as the different approaches they employ to meet the
needs of their children. Caregivers indicate when they began to
advocate; describe how they continue their efforts across schools,
medical offices, therapies, communities, and virtual spaces; and
discuss how they adapt to changing social and health climates and
educational delivery modes. They also share their collective wisdom
to assist other parents who are new to the advocacy platform or are
feeling discouraged with the process. This is must-reading for
family members, teachers, administrators, health care personnel,
and everyone invested in creating a culture of respect, love, and
understanding.Book Features: Emphasizes how families have resisted
the deficit-based view of their children while still utilizing
systems of support. Identifies gaps and challenges across multiple
systems, as well as "what's working." Incorporates the fields of
special education and disability studies in education. Uses the
framework of DisCrit to explore how disability and other social
identities operate in tandem, examining concepts such as power,
access, privilege, and barriers. Positions caregivers as experts in
their children's lives, illustrating how they advocate for their
children, teens, and young adults. Takes a deep dive into the
nuances of generational, cultural, organizational, and geographical
factors that impact how caregivers advocate. Resists approaches
that typically involve professionals dictating what families need,
centering instead on a collaborative model that includes families
and professionals.
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