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Future progress in genetic research and technologies is likely to
further increase the availability of interactive personal genomic
information to non-experts. This trend raises technological,
ethical, and regulatory concerns related to how people make sense
of, engage with, and rely on their personal genomic data. Such
concerns are not only of paramount importance for health
professionals and policy makers, but are also a pressing issue for
human-computer interaction (HCI) research. HCI tools, methods and
practices can help make genomic information more accessible and
understandable to non-experts. These authors make the argument that
the complexity, importance, and personal relevance of this type of
information makes understanding, informing, and empowering
non-experts' interaction with personal genomics a key challenge
that lies ahead for the HCI community. This monograph explores the
roles HCI can play in helping non-experts contribute, understand,
engage with, and share their personal genomic information. It is
also a call to action for those that are interested in the
intersection of personal informatics and HCI, and, more broadly, in
facilitating non-expert interaction with large amounts of complex,
personal and uncertain information.
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