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Ensuring Quality Cancer Care (Paperback, New)
Institute of Medicine and National Research Council, Commission on Life Sciences, Institute of Medicine, National Cancer Policy Board; Edited by Joseph V Simone, …
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R1,404
Discovery Miles 14 040
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Ships in 12 - 17 working days
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We all want to believe that when people get cancer, they will
receive medical care of the highest quality. Even as new scientific
breakthroughs are announced, though, many cancer patients may be
getting the wrong care, too little care, or too much care, in the
form of unnecessary procedures. How close is American medicine to
the ideal of quality cancer care for every person with cancer?
Ensuring Quality Cancer Care provides a comprehensive picture of
how cancer care is delivered in our nation, from early detection to
end-of-life issues. The National Cancer Policy Board defines
quality care and recommends how to monitor, measure, and extend
quality care to all people with cancer. Approaches to
accountability in health care are reviewed. What keeps people from
getting care? The book explains how lack of medical coverage,
social and economic status, patient beliefs, physician
decision-making, and other factors can stand between the patient
and the best possible care. The board explores how cancer care is
shaped by the current focus on evidence-based medicine, the
widespread adoption of managed care, where services are provided,
and who provides care. Specific shortfalls in the care of breast
and prostate cancer are identified. A status report on health
services research is included. Ensuring Quality Cancer Care offers
wide-ranging data and information in clear context. As the baby
boomers approach the years when most cancer occurs, this timely
volume will be of special interest to health policy makers, public
and private healthcare purchasers, medical professionals, patient
advocates, researchers, and people with cancer. Table of Contents
Front Matter Summary 1 Introduction 2 The Cancer Care 'System' 3
Ensuring Access to Cancer Care 4 Defining and Assessing Quality
Cancer Care 5 Health Care Delivery and Quality of Cancer Care 6
Cancer Care Quality Assurance 7 Health Services Research in Cancer
Care 8 Findings and Recommendations Glossary Acronyms Index
Health literacy is the degree to which individuals can obtain,
process, and understand the basic health information and services
they need to make appropriate health decisions. Nearly half of all
American adults - 90 million people - have inadequate health
literacy to navigate the health care system. Implications of Health
Literacy for Public Health is the summary of a workshop convened by
the Institute of Medicine Roundtable on Health Literacy in November
2013 that focused on the implications of health literacy for the
mission and essential services of public health. The workshop
featured the presentation of a commissioned paper on health
literacy activities under way in public health organizations. Other
presentations examined the implications of health literacy for the
mission and essential services of public health, for example,
community health and safety, disease prevention, disaster
management, or health communication. This report includes the
commissioned paper and summaries of the workshop presentations.
Only more recently has it been realized that the intense effort to
care for and cure a child with cancer does not end with survival.
Continued surveillance and a variety of interventions may, in many
cases, be needed to identify and care for consequences of treatment
that can appear early or only after several decades and impair
survivors' health and quality of life. The more than two-thirds of
childhood cancer survivors who experience late effects-that is,
complications, disabilities, or adverse outcomes-as a result of
their disease, its treatment, or both, are the focus of this report
which outlines a comprehensive policy agenda that links improved
health care delivery and follow-up, investments in education and
training for health care providers, and expanded research to
improve the long-term outlook for this growing population now
exceeding 270,000 Americans. Table of Contents Front Matter Summary
1. Introduction 2. The Epidemiology of Childhood Cancer 3. The
Trajectory of Childhood Cancer Care 4. Late Effects of Childhood
Cancer 5. Delivering Survivorship Care 6. Assuring Appropriate
Educational Support Services 7. Employment, Insurance, and Economic
Issues 8. Research Issues 9. Findings and Recommendations
Health literacy is the degree to which individuals can obtain,
process, and understand the basic health information and services
they need to make appropriate health decisions. According to
"Health Literacy: A Prescription to End Confusion" (IOM, 2004),
nearly half of all American adults--90 million people--have
inadequate health literacy to navigate the healthcare system.
To address issues raised in that report, the Institute of Medicine
convened the Roundtable on Health Literacy, which brings together
leaders from the federal government, foundations, health plans,
associations, and private companies to discuss challenges facing
health literacy practice and research and to identify approaches to
promote health literacy in both the public and private sectors. On
November 30, 2010, the roundtable cosponsored a workshop with the
University of California, Los Angeles (UCLA), Anderson School of
Management in Los Angeles.
"Improving Health Literacy Within a State" serves as a summary of
what occurred at the workshop. The workshop focused on
understanding what works to improve health literacy across a state,
including how various stakeholders have a role in improving health
literacy. The focus of the workshop was on presentations and
discussions that address (1) the clinical impacts of health
literacy improvement approaches; (2) economic outcomes of health
literacy implementation; and (3) how various stakeholders can
affect health literacy.
Interpreting the Volume-Outcome Relationship in the Context of
Cancer Care is a summary of a workshop held on May 11, 2000, which
brought together experts to review evidence of the relationship
between volume of services and health-related outcomes for cancer
and other conditions, discuss methodological issues related to the
interpretation of the association between volume and outcome,
assess the applicability of volume as an indicator of quality of
care; and identify research needed to better understand the
volume--outcome relationship and its application to quality
improvement.
One of the key recommendations of the joint IOM and NRC book, From
Cancer Patient to Cancer Survivor: Lost in Transition, is that
patients completing their primary treatment for cancer be given a
summary of their treatment and a comprehensive plan for follow-up.
This book answers practical questions about how this "Survivorship
Care Plan," including what exactly it should contain, who will be
responsible for creating and discussing it, implementation
strategies, and anticipated barriers and challenges. Table of
Contents Front Matter Abstract 1 Introduction 2 Suvivorship Care
Planning 3 Perspectives on Suvivorship Care Planning 4 Resources
for Completing the Care Plan 5 Pilot Tests and Assessment of Their
Impact 6 Wrap-up Session Appendix A Workshop Agenda Appendix B
Participant Names and Affiliations Appendix C Excerpt: From Cancer
Patient to Cancer Survivor: Lost in Transition Appendix D
Commissioned Background Papers Appendix E Template for \"Cancer
Survivorship Care Plan\" Tested in IOM Focus Groups and Interviews
Appendix F Treatment Summary Forms Developed by the Children's
Oncology Group (COG) Appendix G Memorial Sloan-Kettering Cancer
CenterTreatment Summary and Follow-Up Plan
The Institute of Medicine (IOM) Roundtable on Health Literacy
focuses on bringing together leaders from the federal government,
foundations, health plans, associations, and private companies to
address challenges facing health literacy practice and research and
to identify approaches to promote health literacy in both the
public and private sectors. The roundtable serves to educate the
public, press, and policy makers regarding the issues of health
literacy, sponsoring workshops to discuss approaches to resolve
health literacy challenges. It also builds partnerships to move the
field of health literacy forward by translating research findings
into practical strategies for implementation. The Roundtable held a
workshop March 29, 2012, to explore the field of oral health
literacy.
The workshop was organized by an independent planning committee in
accordance with the procedures of the National Academy of Sciences.
The planning group was composed of Sharon Barrett, Benard P.
Dreyer, Alice M. Horowitz, Clarence Pearson, and Rima Rudd. The
role of the workshop planning committee was limited to planning the
workshop. Unlike a consensus committee report, a workshop summary
may not contain conclusions and recommendations, except as
expressed by and attributed to individual presenters and
participants. Therefore, the summary has been prepared by the
workshop rapporteur as a factual summary of what occurred at the
workshop.
This report of the proceedings of a symposium held in conjunction
with the release of the IOM report, From Cancer Patient to Cancer
Survivor: Lost in Transition, represents an effort on the part of
the American Society of Clinical Oncology (ASCO), the National
Coalition for Cancer Survivorship (NCCS), and the Institute of
Medicine (IOM) to further disseminate the findings and
recommendations of the IOM report and to take the next step toward
implementation of those recommendations. The symposium and this
report serve as important vehicles to raise awareness, fill gaps
that have existed in cancer patients' long-term care, and chart a
course for quality care for cancer survivors and their families.
More than 100 stakeholders in the cancer community, including
survivors, advocates, healthcare providers, government officials,
insurers and payers, and researchers participated in the symposium.
This report culminates a series of work at the IOM focused on
cancer survivorship. The idea to embark on a major study of cancer
survivorship within the National Academies originated with the
National Cancer Policy Board (NCPB). The NCPB was established in
1997 in the IOM and the National Research Council's Division of
Earth and Life Studies at the request of the National Cancer
Institute (NCI), the National Institutes of Health, and the
President's Cancer Panel. The NCPB identified emerging policy
issues in the nation's effort to combat cancer, and prepared
reports that address those issues, including a series of reports on
topics ranging from cancer prevention to end-of-life care. Table of
Contents Front Matter Abstract 1 Introduction 2 Plenary Session 3
Morning Breakout Sessions with Invited Speakers 4 Luncheon Address
5 Afternoon Breakout Sessions with Invited Speakers 6 Reports from
Breakout Sessions References Appendix A: Symposium Agenda Appendix
B: American Society of Clinical Oncology Press Release
In Meeting Psychosocial Needs of Women with Breast Cancer, the
National Cancer Policy Board of the Institute of Medicine examines
the psychosocial consequences of the cancer experience. The book
focuses specifically on breast cancer in women because this group
has the largest survivor population (over 2 million) and this
disease is the most extensively studied cancer from the standpoint
of psychosocial effects. The book characterizes the psychosocial
consequences of a diagnosis of breast cancer, describes
psychosocial services and how they are delivered, and evaluates
their effectiveness. It assesses the status of professional
education and training and applied clinical and health services
research and proposes policies to improve the quality of care and
quality of life for women with breast cancer and their families.
Because cancer of the breast is likely a good model for cancer at
other sites, recommendations for this cancer should be applicable
to the psychosocial care provided generally to individuals with
cancer. For breast cancer, and indeed probably for any cancer, the
report finds that psychosocial services can provide significant
benefits in quality of life and success in coping with serious and
life-threatening disease for patients and their families. Table of
Contents Front Matter Executive Summary 1 Introduction 2
Epidemiology of Breast Cancer 3 Psychosocial Needs of Women with
Breast Cancer 4 Psychosocial Services and Providers 5 The
Effectiveness of Psychosocial Interventions for Women with Breast
Cancer 6 Delivering Psychosocial Services 7 Barriers to Appropriate
Use of Psychosocial Services 8 Research Appendix A Meeting
Psychosocial Needs of Women with Breast Cancer Appendix B Tables
and Boxes Summarizing Evidence from Clinical Trials
Cancer ranks second only to heart disease as a leading cause of
death in the United States, making it a tremendous burden in years
of life lost, patient suffering, and economic costs. Fulfilling the
Potential for Cancer Prevention and Early Detection reviews the
proof that we can dramatically reduce cancer rates. The National
Cancer Policy Board, part of the Institute of Medicine, outlines a
national strategy to realize the promise of cancer prevention and
early detection, including specific and wide-ranging
recommendations. Offering a wealth of information and directly
addressing major controversies, the book includes: A detailed look
at how significantly cancer could be reduced through lifestyle
changes, evaluating approaches used to alter eating, smoking, and
exercise habits. An analysis of the intuitive notion that screening
for cancer leads to improved health outcomes, including a
discussion of screening methods, potential risks, and current
recommendations. An examination of cancer prevention and control
opportunities in primary health care delivery settings, including a
review of interventions aimed at improving provider performance.
Reviews of professional education and training programs, research
trends and opportunities, and federal programs that support cancer
prevention and early detection. This in-depth volume will be of
interest to policy analysts, cancer and public health specialists,
health care administrators and providers, researchers, insurers,
medical journalists, and patient advocates. Table of Contents Front
Matter Executive Summary 1. Introduction 2. Potential to Reduce the
Cancer Burden Through Cancer Prevention and Early Detection 3.
Lifestyle Behaviors Contributing to the Burden of Cancer 4.
Modifying Health Risk Behaviors 5. Potential of Screening to Reduce
the Burden of Cancer 6. Improving Participation in Cancer Screening
Programs 7. Adopting New Technology in the Face of Uncertain
Science: The Case of Screening for Lung Cancer 8. Professional
Education and Training 9. Federal Programs That Support Cancer
Prevention and Early Detection 10. Research Trends and
Opportunities 11. Findings, Policy Implications, and
Recommendations References Glossary Index
With the risk of more than one in three getting cancer during a
lifetime, each of us is likely to experience cancer, or know
someone who has survived cancer. Although some cancer survivors
recover with a renewed sense of life and purpose, what has often
been ignored is the toll taken by cancer and its treatment?on
health, functioning, sense of security, and well-being. Long
lasting effects of treatment may be apparent shortly after its
completion or arise years later. The transition from active
treatment to post-treatment care is critical to long-term health.
From Cancer Patient to Cancer Survivor focuses on survivors of
adult cancer during the phase of care that follows primary
treatment. The book raises awareness of the medical, functional,
and psychosocial consequences of cancer and its treatment. It
defines quality health care for cancer survivors and identifies
strategies to achieve it. The book also recommends improvements in
the quality of life of cancer survivors through policies that
ensure their access to psychosocial services, fair employment
practices, and health insurance. This book will be of particular
interest to cancer patients and their advocates, health care
providers and their leadership, health insurers, employers,
research sponsors, and the public and their elected
representatives. Table of Contents Front Matter Executive Summary 1
Introduction 2 Cancer Survivors 3 The Medical and Psychological
Concerns of Cancer Survivors After Treatment 4 Delivering Cancer
Survivorship Care 5 Providers of Survivorship Care: Their Supply
and Education and Training 6 Employment, Insurance, and Economic
Issues 7 Research Glossary Index
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