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Doctors, patients, investigators, administrators, and policymakers
who assign diagnoses assume three elements: the name describes an
entity with conceptual or evidentiary boundaries, the person
setting the name has a high degree of certainty, and the name has a
consensus definition. This book challenges this practice and offers
an alternative to assigning diagnoses: quantitating diagnostic
uncertainty in personal and public medical plans. This book offers
the stakeholders' views participating in a workshop, sponsored by
the Barbara Volcker Center/Hospital for Special Surgery, taking
place in April 2020, about uncertain diagnoses. Chapters examine
the circumstances in which diagnosis names are "unassignable",
either because patients do not fit within diagnostic "boxes" or
because health abnormalities evolve and change over time. In
addition, the book deconstructs the processes of diagnosis and
explores how different stakeholders used diagnosis names for
various purposes. In examining pertinent questions, the book offers
a roadmap to achieving consensus definitions or including measures
of uncertainty in personal care, research, and policy. Diagnoses
Without Names: Challenges for Medical Care, Research, and Policy is
an essential resource for physicians and related professionals,
residents, fellows, and graduate students in internal medicine,
rheumatology, and clinical immunology as well as investigators,
administrators, policymakers.
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