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This report explores the current state of end-of-life care policy and practice in the UK. It focuses in particular on the experiences of older people and incorporates their views and the views of carers. Drawing on a comprehensive literature review, analysis of data from an ESRC-funded study, and the outcomes of a consultation exercise with older people hosted by Help the Aged, the report identifies the range of patterns and circumstances of death and dying In old age; outlines the current policy and practice context; compares the experiences of older people who receive specialist palliative care and those who do not; and explores key issues in older people's accounts of death, dying and bereavement, including their practical, social and spiritual concerns. The issues raised in the report will feed into current debates such as those around palliative health and end-of-life care, and right-to-die legislation.
Ageing populations mean that palliative and end of life care for
older people must assume greater priority. Indeed, there is an
urgent need to improve the experiences of older people at the end
of life, given that they have been identified as the 'disadvantaged
dying'. To date, models of care are underpinned by the ideals of
specialist palliative care which were developed to meet the needs
of predominantly middle-aged and 'young old' people, and evidence
suggests these may not be adequate for the older population group.
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