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Medical research has been central to biomedicine in Africa for over a century, and Africa, along with other tropical areas, has been crucial to the development of medical science. At present, study populations in Africa participate in an increasing number of medical research projects and clinical trials, run by both public institutions and private companies. Global debates about the politics and ethics of this research are growing and local concerns are prompting calls for social studies of the "trial communities" produced by this scientific work. Drawing on rich, ethnographic and historiographic material, this volume represents the emergent field of anthropological inquiry that links Africanist ethnography to recent concerns with science, the state, and the culture of late capitalism in Africa.
Medical research has been central to biomedicine in Africa for over a century, and Africa, along with other tropical areas, has been crucial to the development of medical science. At present, study populations in Africa participate in an increasing number of medical research projects and clinical trials, run by both public institutions and private companies. Global debates about the politics and ethics of this research are growing and local concerns are prompting calls for social studies of the "trial communities" produced by this scientific work. Drawing on rich, ethnographic and historiographic material, this volume represents the emergent field of anthropological inquiry that links Africanist ethnography to recent concerns with science, the state, and the culture of late capitalism in Africa.
What is the value of medical research? With contributions from anthropologists, sociologists and activists, this approach brings into focus the forms of value - social, epistemic, and economic - that are involved in medical research practices and how these values intersect with everyday living. Though their work covers wide empirical ground -from HIV trials in Kenya and drug donation programs in Tanzania to industry-academic collaborations in the British National Health Service - the authors share a commitment to understanding the practices of medical research as embedded in both local social worlds and global markets. Their collective concern is to rethink the conventional ethical demarcations betwweenpaid and unpaid research services in light of the social and material organisation of medical research practices. . Rather than warn against economic incursions into medical knowledge and health practice, or, alternatively, the reduction of local experience to the standards of bioethics, we hope to illuminate the array of practices, knowledges, and techniques through which the value of medical research is brought into being. This book was originally published as a special issue of Journal of Cultural Economy.
What is the value of medical research? With contributions from anthropologists, sociologists and activists, this approach brings into focus the forms of value - social, epistemic, and economic - that are involved in medical research practices and how these values intersect with everyday living. Though their work covers wide empirical ground -from HIV trials in Kenya and drug donation programs in Tanzania to industry-academic collaborations in the British National Health Service - the authors share a commitment to understanding the practices of medical research as embedded in both local social worlds and global markets. Their collective concern is to rethink the conventional ethical demarcations betwweenpaid and unpaid research services in light of the social and material organisation of medical research practices. . Rather than warn against economic incursions into medical knowledge and health practice, or, alternatively, the reduction of local experience to the standards of bioethics, we hope to illuminate the array of practices, knowledges, and techniques through which the value of medical research is brought into being. This book was originally published as a special issue of Journal of Cultural Economy.
Conducting good, ethical global health research is more important than ever. Increased global mobility and connectivity mean that in today's world there is no such thing as 'local health'. How we experience the effects of disease may be shaped by our social and economic differences, but the sick in one part of the world and the healthy in another are connected through economics, politics, media, and imagination, as well as by the infectiousness of disease. Global health research carried out through transnational collaboration is one crucial way in which people from far-flung geographic regions relate to each other. Good global health research and the relationships it creates, therefore, concerns us all. This book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. Our aim is to create a training tool which can begin to fill the gap between research ethics guidelines, and their implementation 'on the ground'.The case studies, therefore, focus on 'relational' ethics: ethical actions and ideas that emerge through relations with others, rather than in regulations. The case studies are based on stories and experiences collected by a group of anthropologists who have worked with leading transnational medical research organisations across Africa in the past decade. The stories have been anonymised, combined with each other, and substantially altered in order to provide 'stumbling stones' to start discussion, without naming real places or situations. As a collection, these stories offer a flexible resource for training across a variety of contexts, such as medical research organisations, universities, collaborative sites, and NGOs. We hope they will encourage global health researchers to think - and talk - about their everyday experiences and practices, and about ethics, in a new light.
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