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This book offers an empowering approach to working with people with an acquired brain injury (ABI) based upon the views and perspectives of people with ABI themselves. Drawing upon Christine Durham's own ABI experience and Paul Ramcharan's engagement in disability research over a quarter of a century, this volume gives voice to 36 participants with ABI, as well as carers and other professionals from both urban and rural areas. This unique perspective provides a long-needed, empathic alternative to the deficit-based model of ABI that dominates medical literature and existing rehabilitation models. In Insight into Acquired Brain Injury, the authors use educational and learning principles together with Durham's extensive archive of experiential data to offer a reframing of the nature and experience of ABI and relevant a set of practical, real-world tools for practitioners. These ready-to-adopt-and-adapt scripts, guided interviews, research checklists, thinking tools and other innovative techniques are designed to engage with people and colleagues about brain injury as a means of supporting them to feel and fare better. With compassion and first-hand awareness, Insight into Acquired Brain Injury provides a much-needed perspective that deepens current understanding and translates the complicated life-worlds of people living with ABI in order to motivate, empower and increase their participation.
""The editors have brought together a range of eminent contributors
who present a range of issues throughout the life cycle. The book
asserts that it hopes to 'assist readers to anticipate change and
discontinuity in people's lives and think about strategies to
support them' through the many challenges that they may face in
their lives. In my view this book certainly does that and the
editors and contributors are to be congratulated on the production
of a relevant and contemporary text that I have no hesitation in
both endorsing and recommending to all involved in supporting and
or caring for people with learning disabilities." ""The editors have gathered an authoritative faculty to present
and discuss a range of contemporary issues; both practical and
ethical. The text is well grounded in the lived experience of
people with disability and draws on the evidence-base of
contemporary science. Each chapter includes thought provoking
exercises. This is a seminal text for students and practitioners,
researchers and policy makers." ""I currently own a copy of the first edition and it has proved
an invaluable resource time and time again. There is not an essay I
complete that does not make reference to the book and I can
consistently use it to reflect back on my practice as a student
nurse and social worker. Having read several extracts from the new
edition it does appear to include very high quality content
covering learning disabilities over the lifespan ... if I were to
personally recommend any book for budding or current learning
disability professionals then this would be it." ""I like the way it has primary and secondary information from a
range of sources. The exercises in the book also get you to think
about the situation in question which helps us think about our
values and anti-oppressive practice ... This book really does start
with the basics and having a learning disability from birth and the
effects, to in depth knowledge and literature ... This book would
be very helpful to me as it brings in literature policies and
models from both a health and social side, which is important for
my course and collaborative working." ""It is written with a clearly conveyed in-depth knowledge and
in a way that has professional lived experience within the context
of the work. The authors have taken into account the emotional,
client-centred approach to the modern practitioner's practice ...
The book gives a true wealth of good practice scenarios that can
only help practitioners be good at what they do and aspire to
be." With its spread of chapters covering key issues across the life cycle this text has established itself as the foundational primer for those studying the lived experiences of people with learning disabilities and their families, and outcomes achieved through services and support systems. Recognising learning disability as a lifelong disability, this accessible book is structured around the life cycle. The second edition is refreshed and expanded to include seven new chapters, covering: Aetiology Breaking news (about disability) and early intervention Transition to adulthood The sexual lives of women Employment Personalisation People with hidden identities With contributions from respected figures from a range of disciplines, the book draws heavily upon multidisciplinary perspectives and is based on the latest research and evidence for practice. The text is informed by medical, social and legal models of learning disability, exploring how "learning disability" is produced, reproduced and understood. Extensive use is made of real-life case studies, designed to bring theory, values, policy and practice to life. Narrative chapters describe, in the words of people with learning disabilities themselves, their lives and aspirations. They helpfully show readers the kinds of roles played by families, advocates and services in supporting people with learning disabilities. New exercises and questions have been added to encourage discussion and reflection on practice. "Learning Disability" is core reading for students entering health and social care professions to work with people with learning disabilities. It is a compelling reference text for practitioners as it squarely addresses the challenges facing people with learning disability, their loved ones and the people supporting them. Contributors Dawn Adams, Kathryn Almack, Dorothy Atkinson, Nigel Beail, Christine Bigby, Alison Brammer, Jacqui Brewster, Hilary Brown, Jennifer Clegg, Lesley Cogher, Helen Combes, Clare Connors, Bronach Crawley, Eric Emerson, Margaret Flynn, Linda Gething, Dan Goodley, Peter Goward, Gordon Grant, Chris Hatton, Sheila Hollins, Jane Hubert, Kelley Johnson, Gwynnyth Llewellyn, Heather McAlister, Michelle McCarthy, Alex McClimens, Roy McConkey, David McConnell, Keith McKinstrie, Fiona Mackenzie, Ghazala Mir, Ada Montgomery, Lesley Montisci, Elizabeth Murphy, Chris Oliver, Richard Parrott, Paul Ramcharan, Malcolm Richardson, Bronwyn Roberts, Philippa Russell, Kirsten Stalker, Martin Stevens, John Taylor, Irene Tuffrey-Wijne, Sally Twist, Jan Walmsley, Kate Woodcock
This book offers an empowering approach to working with people with an acquired brain injury (ABI) based upon the views and perspectives of people with ABI themselves. Drawing upon Christine Durham's own ABI experience and Paul Ramcharan's engagement in disability research over a quarter of a century, this volume gives voice to 36 participants with ABI, as well as carers and other professionals from both urban and rural areas. This unique perspective provides a long-needed, empathic alternative to the deficit-based model of ABI that dominates medical literature and existing rehabilitation models. In Insight into Acquired Brain Injury, the authors use educational and learning principles together with Durham's extensive archive of experiential data to offer a reframing of the nature and experience of ABI and relevant a set of practical, real-world tools for practitioners. These ready-to-adopt-and-adapt scripts, guided interviews, research checklists, thinking tools and other innovative techniques are designed to engage with people and colleagues about brain injury as a means of supporting them to feel and fare better. With compassion and first-hand awareness, Insight into Acquired Brain Injury provides a much-needed perspective that deepens current understanding and translates the complicated life-worlds of people living with ABI in order to motivate, empower and increase their participation.
In the wake of the profound changes in policy and practice around caring over the past ten years, this volume takes a fresh look at the social and legal status of carers. Demonstrating the scope and diversity of 'caring', the contributors highlight the positive aspects of caring and the interdependence of many caring relationships but also broach the sensitive and complex subject of `poor' care and the importance of identifying and meeting the needs of 'hidden carers'. Arguing that policy and practice must take account of both carers' and users' interests, the contributors re-evaluate the existing role of carers in developing new ideas in the planning and delivery of their services. Each of the book's chapters points to the future and looks at alternative and innovative ways forward in relation to thinking, policy and practice. This will make essential reading for social work and social science academics and students; professionals in the statutory, voluntary and independent sectors looking after the interests of carers; health and social care practitioners; nurses and care agency workers.
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