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Psychogenic Non-Epileptic Seizures (PNES) can cause blackouts,
collapses, involuntary movements, loss of memory and have major
impact on quality of life. Whereas epilepsy is caused by abnormal
electrical activity in the brain, PNES are psychological-based
responses to triggers inside or outside the body that are perceived
as threatening by the person affected. PNES are poorly understood
by the medical community. It is common for doctors to struggle to
explain this diagnosis, which can leave their patients frustrated
and confused. Often people are told that their PNES are caused by
"stress" and sent away with no further support or advice. It is no
wonder that those affected feel isolated, abandoned and hopeless
about living with the condition. In Our Words: Personal Accounts of
Living with Non-Epileptic Seizures shows those diagnosed with PNES
that they are not alone, and how others have courageously managed
to come to terms with their seizures. These heartfelt personal
accounts will also allow family, friends, healthcare providers and
researchers to gain more understanding of the condition and work to
provide a better quality of life to those living with PNES.
To an outside observer, Psychogenic Non-Epileptic Seizures (PNES)
look like epileptic seizures. The manifestations of PNES include
collapses, impaired consciousness, and seizure-related injuries.
However, unlike epileptic seizures, which are the result of
abnormal electrical discharges in the brain, most PNES are an
automatic psychological response to a trigger perceived as
threatening. Not least because the changes in the brain that
underpin PNES cannot be visualised easily with clinical tests (such
as the EEG), there are many uncertainties and controversies
surrounding the condition. Patients often provoke a mixture of
emotions in healthcare professionals. In the authors' previous
book, In Our Words: Personal Accounts of Living with Non-Epileptic
Seizures, over 100 individuals with PNES and their family wrote
about their experiences with the condition. While some had positive
care experiences, many were left feeling confused, angry, and
abandoned by the clinicians they had encountered. Non-Epileptic
Seizures in Our Experience: Accounts of Health Care Professionals
complements the authors' previous book by presenting the
perspectives of over 90 members of different healthcare professions
from around the world. The anonymous publication format has enabled
many not only to share success stories but also to be open about
difficulties and failures. This volume will be an invaluable
resource for both highly experienced professionals as well as
relative novice and those experiencing PNES. This book will
challenge negative attitudes surrounding the condition, improve
understanding between healthcare professionals and patients, and -
ultimately - advance the quality of care provided for those with
PNES.
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