The Search for the Legacy of the USPHS Syphilis Study at Tuskegee is a collection of essays that seeks to redefine the "legacy" of the infamous Tuskegee Syphilis Study in light of recent findings from other scientific studies that challenge the long-standing, widely-held understanding of the study. These essays are written with thoughtful attention to fully integrate the essayists' perspectives on the impact of the study on the lives of Americans today and place the legacy of the study within the evolving picture of racial and ethnic relations in the United States. Each essayist looks through his or her own personal and professional prism to give an account of what constitutes that legacy today. Contributors include the two leading historians of the Tuskeegee Syphilis Study and two former Surgeons General of the United States as well as other prominent scholars from the fields of public health, bioethics, psychology, biostatistics, medicine, dentistry, journalism, medical sociology, medical anthropology, and health disparities research.

"Community-Based Participatory Research (CBPR) has become the preferred model for conducting research in communities. Most scientists who conduct such research now recognize that working in partnership with the community is preferable, and more ethical, than conducting research on a community . As Surgeon General of the United States, I direct a number of programs aimed at encouraging Americans to avoid tobacco, engage in physical activity, consume more nutritious diets, and protect their health in other ways. We need more effective methods to persuade, motivate, and enable individuals and communities to adopt these healthier lifestyles, and it is through CBPR that we will be able to discover these methods." From the Foreword by Regina M. Benjamin, MD, MBA, U.S. Surgeon General

"The editors of this book bring together in one place both a description of epidemiological methods and a discussion of community-level issues. It is a volume that will prove useful to those who wish to conduct contemporary community-based research." - Praise for the First Edition from the Foreword David Satcher, Former Surgeon General of the United States

This second edition of a highly regarded textbook on the foundations of and strategies for achieving fertile community-based health care research has been completely revised and updated. It now includes new chapters on translating research into practice, evaluating research, and applying community-based participatory research (CBPR) principles to service, education, and evaluation. The book also updates a crucial chapter on the voices of community stakeholders and an important study of the ethical issues surrounding the Tuskegee Syphilis Study. Edited by renowned professors of community-based research, the text is distinguished by its how-to approach and focus on practical research methods.

The text discusses the unique challenges of conducting CBPR and addresses ways to build and sustain community partnerships. It explores ethical issues regarding health care research, includes input from community stakeholders, and describes national and international support for CBPR. Research methods covered include qualitative studies, surveys, and intervention trials. Applications of CBPR illustrate how to translate research into practice and community-based participatory approaches to service, education, and evaluation. The second edition includes new chapters on:

Building and sustaining researcher/community partnerships National and international investments in and support for CBPR Surveys and methods for conducting CBPR Translating research into practice Community-based participatory approaches to service, education, and evaluation

The Search for the Legacy of the USPHS Syphilis Study at Tuskegee is a collection of essays that seeks to redefine the "legacy" of the infamous Tuskegee Syphilis Study in light of recent findings from other scientific studies that challenge the long-standing, widely-held understanding of the study. These essays are written with thoughtful attention to fully integrate the essayists' perspectives on the impact of the study on the lives of Americans today and place the legacy of the study within the evolving picture of racial and ethnic relations in the United States. Each essayist looks through his or her own personal and professional prism to give an account of what constitutes that legacy today. Contributors include the two leading historians of the Tuskeegee Syphilis Study and two former Surgeons General of the United States as well as other prominent scholars from the fields of public health, bioethics, psychology, biostatistics, medicine, dentistry, journalism, medical sociology, medical anthropology, and health disparities research.