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Medical care and biomedical research are rapidly becoming global.
Ethical questions that once arose only in the narrow context of the
physician-patient relationship in relatively prosperous societies
are now being raised across societies, cultures, and continents.
For example, what should be the "standard of care" for clinical
trials of medical innovations in poorer countries? Are researchers
obligated to compare new therapies or drugs with the best known
ones available, or can they use as a benchmark the actual
treatments (or lack of treatments) available to poor people? Should
pharmaceutical companies seeking to lower the costs of new drug
trials be allowed to enroll citizens of less developed countries in
them even when those individuals cannot afford and will not be
eligible for the resulting drugs? More generally, should the norms
of medicine and research be the same across cultures or can they
adapt to local social, economic, or religious conditions? Global
Bioethics gathers some of the world's leading bioethicists to
explore many of the new questions raised by the globalization of
medical care and biomedical research. Among the topics covered are
the impact of globalization on the norms of medical ethics, the
conduct of international research, the ethics of international
collaborations, challenges to medical professionalism in the
international setting, and the relation of religion to global
bioethics.
Each year, neonatal Intensive care units (NICUs) in the U.S. and
around the world help thousands of sick or premature newborns
survive. NICUs are committed to the ideals of family-centered care,
which encourages shared decision-making between parents and NICU
caregivers. In cases of infants with conditions marked by high
mortality, morbidity, or great suffering, family-centered care
affirms the right of parents to assist in making decisions
regarding aggressive treatment for their infant. Often, these
parents' difficult and intimate decisions are shaped profoundly by
their religious beliefs. In light of this, what precisely are the
teachings of the major world religious traditions about the status
and care of the premature or sick newborn? Few studies have
grappled with what major religious traditions teach about the care
of the newborn or how these teachings may bear on parents'
decisions. This volume seeks to fill this gap, providing
information on religious teachings about the newborn to the
multidisciplinary teams of NICU professionals (neonatologists,
advance practice nurses, social workers), as well as to parents of
NICU patients, and students of bioethics. In chapters dealing with
Judaism, Catholicism, Denominational Protestantism, Evangelical
Protestantism, African American Protestantism, Sunni and Shi'a
Islam, Hinduism, Buddhism, Navajo religion, and Seventh Day
Adventism, leading scholars develop the teachings of these
traditions on the status, treatment, and ritual accompaniments of
care of the premature or sick newborn. This is an essential book
that will serve as a first resort for clinicians who need to
understand the religious dynamics influencing anyone making a
difficult decision about her sick newborn.
Long before it cured disease, medicine aimed to relieve suffering-
but despite that precedence, the relief of suffering often takes a
back seat in today's biomedical research and treatment. Modern
bioethics, too, has been slow to come to terms with suffering.
Attention to ethical quandaries has sometimes displaced attention
to the experience of patients. This book seeks to place suffering
at the center of bioethical thinking once again. Among the
questions its contributors explore are: What is the meaning of
suffering? How does it relate to pain? If there can be pain without
suffering, can there be suffering without pain? Does suffering
require advanced cognitive abilities? Can animals suffer? Many
believe that we have strong obligations to relieve or minimize
suffering; what are the limits of these obligations? Does the
relief of suffering justify the termination of a patient's life, as
proponents of euthanasia maintain? What is the bearing of suffering
on the cherished bioethical principle of autonomy? Can suffering
impair a patient's ability to make reasoned choices? To what extent
must the encounter with suffering be an important component of
medical education? Do religious traditions ever move from efforts
to explain and relieve suffering to positions that justify and
promote it? The aim of this book is to undertake a new foray into
this "foreign territory" of suffering. With a foreword by the
distinguished bioethicist Daniel Callahan, its twenty-two chapters,
authored by leading scholars in science and bioethics, are
organized so as to examine suffering in its biological,
psychological, clinical, religious, and ethical dimensions.
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