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This open access book explores the expectations surrounding
dementia, what it ‘looks like’ and how people have been treated
by others. It aims to raise awareness of the different types of
dementia, and how they impact the brain, body, and lived
experience, including experience of Alzheimer’s disease, Vascular
Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia,
Semantic Dementia, and Lewy Body Dementia. The co-authors reflect
on their experience with informal and formal care, before finishing
with a focus on the spectrum of dementia research from clinical
trials to user-led research. Throughout the book, co-authors have
shared personal stories of how dementia has affected them and
people with lived experience of dementia share what they wish
people knew about living with the disease. Co-produced by
people with lived experience of dementia, academics and health care
professionals, this book is an accessible resource about dementia
from the perspective of people actively involved in the field and
essential reading for healthcare professionals wishing to learn
more about the experience of this neuroprogressive condition, as
well as policymakers, and members of the public.
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