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This book celebrates and captures examples of the excellent scholarship that Palgrave's Health, Technology, and Society Series has published since 2006, and reflects on how the field has developed over this time. As a collection of readings drawn from twenty-two books, it is organized around five themes: Innovation, Responsibility, Locus of Care, Knowledge Production, and Regulation and Governance. Structured in this way, the book gives the reader a concise but nonetheless rich guide to the core issues and debates within the field. Complementing these narratives, the original authors have provided new reflection pieces on their texts and on their current work. This then is a book which in part looks back but also looks forward to emerging issues at the intersection of health, technology, and society. It uniquely encompasses and presents a range of expertise in a novel way that is both timely and accessible for students and others new to the field.
Online genetic testing services are increasingly being offered to consumers who are becoming exposed to, and knowledgeable about, new kinds of genetic technologies, as the launch of a 23andme genetic testing product in the UK testifies. Genetic research breakthroughs, cheek swabbing forensic pathologists and celebrities discovering their ancestral roots are littered throughout the North American, European and Australasian media landscapes. Genetic testing is now capturing the attention, and imagination, of hundreds of thousands of people who can not only buy genetic tests online, but can also go online to find relatives, share their results with strangers, sign up for personal DNA-based musical scores, and take part in research. This book critically examines this market of direct-to-consumer (DTC) genetic testing from a social science perspective, asking, what happens when genetics goes online? With a focus on genetic testing for disease, the book is about the new social arrangements which emerge when a traditionally clinical practice (genetic testing) is taken into new spaces (the internet). It examines the intersections of new genetics and new media by drawing from three different fields: internet studies; the sociology of health; and science and technology studies. While there has been a surge of research activity concerning DTC genetic testing, particularly in sociology, ethics and law, this is the first scholarly monograph on the topic, and the first book which brings together the social study of genetics and the social study of digital technologies. This book thus not only offers a new overview of this field, but also offers a unique contribution by attending to the digital, and by drawing upon empirical examples from our own research of DTC genetic testing websites (using online methods) and in-depth interviews in the United Kingdom with people using healthcare services.
Online genetic testing services are increasingly being offered to consumers who are becoming exposed to, and knowledgeable about, new kinds of genetic technologies, as the launch of a 23andme genetic testing product in the UK testifies. Genetic research breakthroughs, cheek swabbing forensic pathologists and celebrities discovering their ancestral roots are littered throughout the North American, European and Australasian media landscapes. Genetic testing is now capturing the attention, and imagination, of hundreds of thousands of people who can not only buy genetic tests online, but can also go online to find relatives, share their results with strangers, sign up for personal DNA-based musical scores, and take part in research. This book critically examines this market of direct-to-consumer (DTC) genetic testing from a social science perspective, asking, what happens when genetics goes online? With a focus on genetic testing for disease, the book is about the new social arrangements which emerge when a traditionally clinical practice (genetic testing) is taken into new spaces (the internet). It examines the intersections of new genetics and new media by drawing from three different fields: internet studies; the sociology of health; and science and technology studies. While there has been a surge of research activity concerning DTC genetic testing, particularly in sociology, ethics and law, this is the first scholarly monograph on the topic, and the first book which brings together the social study of genetics and the social study of digital technologies. This book thus not only offers a new overview of this field, but also offers a unique contribution by attending to the digital, and by drawing upon empirical examples from our own research of DTC genetic testing websites (using online methods) and in-depth interviews in the United Kingdom with people using healthcare services.
This book celebrates and captures examples of the excellent scholarship that Palgrave's Health, Technology, and Society Series has published since 2006, and reflects on how the field has developed over this time. As a collection of readings drawn from twenty-two books, it is organized around five themes: Innovation, Responsibility, Locus of Care, Knowledge Production, and Regulation and Governance. Structured in this way, the book gives the reader a concise but nonetheless rich guide to the core issues and debates within the field. Complementing these narratives, the original authors have provided new reflection pieces on their texts and on their current work. This then is a book which in part looks back but also looks forward to emerging issues at the intersection of health, technology, and society. It uniquely encompasses and presents a range of expertise in a novel way that is both timely and accessible for students and others new to the field.
Users have become an integral part of technology studies. The essays in this volume look at the creative capacity of users to shape technology in all phases, from design to implementation. Using a variety of theoretical approaches, including a feminist focus on users and use (in place of the traditional emphasis on men and machines), concepts from semiotics, and the cultural studies view of consumption as a cultural activity, these essays examine what users do with technology and, in turn, what technology does to users. The contributors consider how users consume, modify, domesticate, design, reconfigure, and resist technological development--and how users are defined and transformed by technology.The essays in part I show that resistance to and non-use of a technology can be a crucial factor in the eventual modification and improvement of that technology; examples considered include the introduction of the telephone into rural America and the influence of non-users of the Internet. The essays in part II look at advocacy groups and the many kinds of users they represent, particularly in the context of health care and clinical testing. The essays in part III examine the role of users in different phases of the design, testing, and selling of technology. Included here is an enlightening account of one company's design process for men's and women's shavers, which resulted in a "Ladyshave" for users assumed to be technophobes.Taken together, the essays in How Users Mattershow that any understanding of users must take into consideration the multiplicity of roles they play--and that the conventional distinction between users and producers is largely artificial.
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