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She knew they would only have a few fleeting months together, but in that time Sarah's unborn daughter would transform her understanding of beauty, worth, and the gift of life. Happily married and teaching history at the University of Oxford, Sarah Williams had credentials, success, and knowledge. It took someone who would never have any of these things to teach her what it means to be human. This extraordinary true story begins with the welcome news of a new member of the Williams family. Sarah's husband, Paul, and their two young daughters share her excitement. But the happiness is short-lived, as a hospital scan reveals a lethal skeletal dysplasia. Birth will be fatal. Sarah and Paul decide to carry the baby to term, a decision that shocks medical staff and Sarah's professional colleagues. Sarah and Paul find themselves having to defend their child's dignity and worth against incomprehension and at times open hostility. They name their daughter, Cerian, Welsh for "loved one." Sarah writes, "Cerian is not a strong religious principle or a rule that compels me to make hard and fast ethical decisions. She is a beautiful person who is teaching me to love the vulnerable, treasure the unlovely, and face fear with dignity and hope." In this candid and vulnerable account, Sarah brings the reader along with her on the journey towards Cerian's birthday and her deathday. It's rare enough to find a writer who can share such a heart-stretching personal experience without sounding sappy, but here is one who at the same time has the ability to articulate the broader cultural issues raised by Cerian's story. In a society striving for perfection, where worth is earned, identity is constructed, children are a choice, normal is beautiful, and deformity is repulsive, Cerian's short life raises vital questions about what we value and where we are headed as a culture. Perfectly Human was first published in the United Kingdom as The Shaming of the Strong. This edition includes a new afterword by the author.
Whose lives count as fully human? The answer matters for everyone, disabled or not. The ancient Greek ideal linked physical wholeness to moral wholeness - the virtuous citizen was "beautiful and good." It's an ideal that has all too often turned deadly, casting those who do not measure up as less than human. In the pre-Christian era, infants with disabilities were left on the rocks; in modern times, they have been targeted by eugenics. Much has changed, thanks to the tenacious advocacy of the disability rights movement. Yesteryear's hellish institutions have given way to customized educational programs and assisted living centers. Public spaces have been reconfigured to improve access. Therapies and medical technology have advanced rapidly in sophistication and effectiveness. Protections for people with disabilities have been enshrined in many countries' antidiscrimination laws. But these victories, impressive as they are, mask other realities that collide awkwardly with society's avowals of equality. Why are parents choosing to abort a baby likely to have a disability? Why does Belgian law allow for euthanasia in cases of disability, even absent a terminal diagnosis or physical pain? Why, when ventilators were in short supply during the first Covid wave, did some states list disability as a reason to deny care? On this theme: - Heonju Lee tells how his son with Down syndrome saved another child's life. - Molly McCully Brown and Victoria Reynolds Farmer recount their personal experiences with disability. - Amy Julia Becker says meritocracies fail because they value the wrong things. - Maureen Swinger asks six mothers around the world about raising a child with disabilities. - Joe Keiderling documents the unfinished struggle for disability rights. - Isaac T. Soon wonders if Saint Paul's "thorn in the flesh" was a disability. - Leah Libresco Sargeant reviews What Can a Body Do? and Making Disability Modern. - Sarah C. Williams says testing for fetal abnormalities is not a neutral practice. Also in the issue: - Ross Douthat is brought low by intractable Lyme disease. - Edwidge Danticat flees an active shooter in a packed mall. - Eugene Vodolazkin finds comic relief at funerals, including his own father's. - Kelsey Osgood discovers that being an Orthodox Jew is strange, even in Brooklyn. - Christian Wiman pens three new poems. - Susannah Black profiles Flannery O'Conner. - Our writers review Eyal Press's Dirty Work, Steve Coll's Directorate S, and Millennial Nuns by the Daughters of Saint Paul. Plough Quarterly features stories, ideas, and culture for people eager to apply their faith to the challenges we face. Each issue includes in-depth articles, interviews, poetry, book reviews, and art.
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