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The National Cancer Policy Forum of the National Academies of
Sciences, Engineering, and Medicine convened a virtual workshop in
March 2021 to examine the existing evidence base on how the Patient
Protection and Affordable Care Act (ACA) has altered the landscape
of cancer prevention and care delivery in the United States. The
workshop featured presentations and discussions reviewing the
effects of the ACA on people at risk for or living with cancer and
providing insight into remaining policy challenges that could
inform future efforts to improve and support the delivery of
high-quality cancer care across the care continuum. This
publication provides a high-level summary of the discussions
presented during the workshop. Table of Contents Front Matter
Proceedings of a Workshop Appendix A: Statement of Task Appendix B:
Workshop Agenda
Graduate medical education (GME) is critical to the career
development of individual physicians, to the functioning of many
teaching institutions, and to the production of our physician
workforce. However, recent reports have called for substantial
reform of GME. The current lack of established GME outcome measures
limits our ability to assess the impact of individual graduates,
the performance of residency programs and teaching institutions,
and the collective contribution of GME graduates to the physician
workforce. To examine the opportunities and challenges in measuring
and assessing GME outcomes, the National Academies of Sciences,
Engineering, and Medicine held a workshop on October 10?11, 2017,
in Washington, DC. Workshop participants discussed: meaningful and
measurable outcomes of GME; possible metrics that could be used to
track these GME outcomes; possible mechanisms for collecting,
collating, analyzing, and reporting these data; and further work to
accomplish this ambitious goal. This publication summarizes the
presentations and discussions from the workshop. Table of Contents
Front Matter Proceedings of a Workshop Appendix A: Statement of
Task Appendix B: Workshop Agenda
Despite advances in the delivery of high-quality cancer care and
improvements in patient outcomes in recent years, disparities in
cancer incidence, care, and patient outcomes persist. To examine
opportunities to improve health equity across the cancer care
continuum, the National Cancer Policy Forum and the Roundtable on
the Promotion of Health Equity hosted a public workshop, Promoting
Health Equity in Cancer Care, on October 25 and October 26, 2021.
This virtual workshop featured presentations and panel discussions
on topics that included: opportunities to improve equitable access
to affordable, high-quality cancer care; strategies to identify and
address the intersectionality of structural racism and implicit
bias in cancer care delivery; the potential for quality measurement
and payment mechanisms to incentivize health equity in cancer care
delivery; and clinical practice data collection efforts to better
assess and care for people living with and beyond cancer. This
publication summarizes the presentation and discussion of the
workshop. Table of Contents Front Matter Proceedings of a Workshop
Appendix A: Statement of Task Appendix B: Workshop Agenda
To examine the potential role of companion animals as sentinels of
relevant, shared environmental exposures that may affect human
aging and cancer, the National Cancer Policy Forum held a workshop
in collaboration with the Forum on Aging, Disability, and
Independence and the Standing Committee on the Use of Emerging
Science for Environmental Health Decisions to explore this
promising and underutilized pathway for research. Presentations and
panel discussions covered the current state of the science and
pathways for accelerating research, along with opportunities and
challenges for using this novel translational approach to exposure
science to advance human health. This Proceedings of a Workshop
outlines the presentations and discussions that occurred during the
workshop. Table of Contents Front Matter Proceedings of a Workshop
Appendix A: Statement of Task Appendix B: Workshop Agenda Appendix
C: Biographical Sketches of Planning Committee Members and Workshop
Speakers
The COVID-19 pandemic has led to dramatic adjustments in cancer
care delivery and cancer research. To examine these changes, the
National Cancer Policy Forum of the National Academies of Sciences,
Engineering, and Medicine convened a virtual workshop, Innovation
in Cancer Care and Cancer Research in the Context of the COVID-19
Pandemic, in July 2021. Workshop speakers considered the lessons
learned from these adaptations in order to improve the delivery of
high-quality cancer care and the conduct of cancer clinical trials
in the post-pandemic era. This Proceedings of a Workshop highlights
presentations and discussions from the workshop. Table of Contents
Front Matter Proceedings of a Workshop Appendix A: Statement of
Task Appendix B: Workshop Agenda
Cancer treatment can lead to an array of significant short- and
long-term physical, psychosocial, and socioeconomic consequences
for patients and their families. To examine the opportunities to
prevent and mitigate the adverse effects of cancer treatment, the
National Academies of Sciences, Engineering, and Medicine hosted a
virtual workshop, Addressing the Adverse Consequences of Cancer
Treatment, in November 2020. This workshop was convened by the
Academies' National Cancer Policy Forum in collaboration with the
Forum on Aging, Disability, and Independence. Workshop
presentations and discussions described the range of adverse
effects that patients with cancer may experience across the life
course, and highlighted potential strategies to improve quality of
life for cancer survivors and their families. Table of Contents
Front Matter Proceedings of a Workshop Appendix A: Statement of
Task Appendix B: Workshop Agenda
Digital health encompasses a broad array of tools and strategies
with the goals of advancing research, increasing health care access
and quality, and making care more personalized. It encompasses
health content, digital health interventions, and digital
applications, such as communication tools connecting patients and
clinicians (e.g., secure email in the patient portal, text, chat,
video visit), remote monitoring tools, clinical decision support
tools, and systems for exchanging health information.
Patient-facing tools, tools for clinicians, and systems to
facilitate research and care improvement are all part of this
diverse landscape, and each raises unique opportunities and
potential challenges. To examine key policy issues for the
effective and safe development, implementation, and use of digital
health technologies in oncology research and care, the National
Cancer Policy Forum of the National Academies of Sciences,
Engineering, and Medicine held a virtual workshop in collaboration
with the Forum on Cyber Resilience. The workshop, Opportunities and
Challenges for Using Digital Health Applications in Oncology, held
on July 13-14, 2020, convened a broad group of experts, including
clinicians and researchers; patient advocates; and representatives
of federal agencies, health professional societies, health care
organizations, insurers, and the pharmaceutical and health
technology industries. Many workshop speakers found the
opportunities presented by digital health tools to be particularly
compelling for oncology; however, capitalizing on these
opportunities necessitates careful attention to the design,
implementation, and use of digital health technologies. This
publication summarizes the presentations and discussions from the
workshop. Table of Contents Front Matter Proceedings of a Workshop
Appendix A: Statement of Task Appendix B: Workshop Agenda
Health literacy is a critical skill for engaging in healthy
behaviors to reduce disease risk and improve health outcomes across
the continuum of cancer care. However, estimates suggest that more
than one-third of the U.S. adult population has low health
literacy, and nearly half of all patients with cancer have
difficulty understanding information about their disease or
treatment. Low health literacy among patients with cancer is
associated with poor health and treatment outcomes, including lower
adherence to treatment, higher rates of missed appointments, and an
increased risk of hospitalization. Low health literacy can also
impede informed decision making, especially as cancer care becomes
increasingly complex and as patients and their families take more
active roles in treatment decisions. To examine opportunities to
improve communication across the cancer care continuum, the
National Cancer Policy Forum collaborated with the Roundtable on
Health Literacy to host a workshop, Health Literacy and
Communication Strategies in Oncology, July 15-16, 2019, in
Washington, DC. Patients, patient advocates, clinicians, and
researchers, representatives of health care organizations, academic
medical centers, insurers, and federal agencies explored the
challenges of achieving effective communication in cancer care.
This publication summarizes the presentations and discussions of
the workshop. Table of Contents Front Matter Proceedings of a
Workshop Appendix A: Statement of Task Appendix B: Workshop Agenda
Scientists and clinicians seek a new paradigm that could improve
the efficiency, cost-effectiveness, and overall success rate of
cancer clinical trials, while maintaining the highest standards of
quality. To explore innovative paradigms for cancer clinical trials
and other ways to improve their quality, the National Cancer Policy
Forum held a workshop, Improving the Quality of Cancer Clinical
Trials, in Washington, DC. The main goals of the workshop were to
examine new approaches to clinical trial design and execution that
would: (1) better inform decisions and plans of those responsible
for developing new cancer therapies (2) more rapidly move new
diagnostic tests and treatments toward regulatory approval and use
in the clinic (3) be less costly than current trials The resulting
workshop summary will serve as input to the deliberations of an
Institute of Medicine committee that will develop consensus-based
recommendations for moving the field of cancer clinical trials
forward. Table of Contents Front Matter Introduction New Clinical
Trial Designs Molecular Imaging Screening for Predictive Markers
Costs of Clinical Trials Regulatory Issues Reports from the Case
Study Discussion Groups Concluding Remarks References Acronyms
Glossary Appendix A: Workshop Agenda Appendix B: Workshop Speakers,
Moderators, and Invited Discussants
The NCI-sponsored cooperative groups have made important
contributions to improving treatment for many types of cancer,
including breast, ovarian, colorectal, and childhood cancers.
Cooperative group research has been instrumental in establishing
innovative treatments that improve outcomes and quality of life.
Despite these successes, the Cooperative Group Program has faced a
number of challenges that threaten its effectiveness. To address
this problem, the National Cancer Policy Forum (NCPF) convened a
workshop titled "Multi-Center Phase III Clinical Trials and NCI
Cooperative Groups" in Washington, DC, on July 1-2, 2008. The
purpose of the workshop was to outline the challenges that the
public clinical cancer research enterprise faces, and to identify
possible solutions to these challenges. Table of Contents Front
Matter Introduction Session 1A: Organization of the NCI Clinical
Trials System Session 1B: Lessons from Non-Cooperative Group
Multi-Center Clinical Trials Session 2: Barriers to Patient
Recruitment and Physician Participation Session 3: Data Collection
Standards and Monitoring Session 4: Costs of Cooperative Group
Clinical Trials Summary and Wrap-Up References Abbreviations and
Acronyms Glossary Appendix A: Workshop Agenda Appendix B: Workshop
Speakers Appendix C: Letter from John Niederhuber, Director of the
National Cancer Institute, to Members of the National Cancer Policy
Forum
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