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In North America, 64% of adults and 25% of children are overweight
or obese. We are bombarded by food; it is everywhere we turn.
People with Prader-Willi syndrome (PWS) are an untapped expertise
in combatting this problem. People with this genetic disorder gain
approximately 20-30% more weight on 50% less calories, and are
driven to eat. The traditional approach to this syndrome was to
lock up all food, and control, restrict, and supervise all
activity. While people with PWS were kept alive, they had no
quality of life. Today, there are leaders within the PWS community
who are taking cutting-edge approaches to combating both health and
quality of life issues. Their secrets are revealed within this
book. ""In 1999 the World Bank asked 60,000 people living on less
than a dollar a day to identify the biggest hurdle to their
advancement. It wasn't food, shelter or health care. It was access
to a voice."" www.videovolunteers.org In 2007 Albertans with
Prader-Willi syndrome and their families were interviewed and they
made the same plea. Prader-Willi syndrome is a genetic condition
with a complex presentation of characteristics including a body
chemistry that is a poor compliment to a pronounced food desire.
However, the people interviewed did not ask for a new diet, or
rehabilitation strategies. They asked that people listen. By
empowering persons with Prader-Willi syndrome and their families to
tell their stories, A Recipe For Success gives a voice to those who
have been unheard, and inspires the people who fi ght for them.
This book is a must read for anyone seeking; a cutting-edge
approach to societal health and wellness; an answer to weight
maintenance for themselves or someone they love, and/or; a means of
supporting persons with disabling conditions such as Prader-Willi
syndrome and beyond to achieve meaningful, healthy lives. This book
explores health and wellness, with an emphasis on food drive, as
well as disability culture, through the voices of self-advocates
with PWS and families. It should be read by: . Parents of all
children (disabled and not) who want to instill positive, healthy
food practices. . Adults who have attempted diets and still not
lost the weight. Adults who are seeking an alternate approach. .
Doctors and other medical professionals who seek continuing
education. . Teachers who are negotiating the balance between
organic and teachable conditions. . Self-advocates with disabling
conditions who want to explore their own personal voice through the
voices of others experiencing stigma and oppression. . Family
members of persons with disabling conditions who want to affirm
their experiences and interpretations and learn how to navigate the
systems. . Government administrators who want to inform their
funding allocation. . Extended family, friends, and the
public-at-large who want to understand disability and reexamine
their attitudes. . Human service workers who want to know how best
to support persons with disabling conditions and how to listen to
families. . Anyone who wants to know about Prader-Willi Syndrome.
In North America, 64% of adults and 25% of children are overweight
or obese. We are bombarded by food; it is everywhere we turn.
People with Prader-Willi syndrome (PWS) are an untapped expertise
in combatting this problem. People with this genetic disorder gain
approximately 20-30% more weight on 50% less calories, and are
driven to eat. The traditional approach to this syndrome was to
lock up all food, and control, restrict, and supervise all
activity. While people with PWS were kept alive, they had no
quality of life. Today, there are leaders within the PWS community
who are taking cutting-edge approaches to combating both health and
quality of life issues. Their secrets are revealed within this
book. "In 1999 the World Bank asked 60,000 people living on less
than a dollar a day to identify the biggest hurdle to their
advancement. It wasn't food, shelter or health care. It was access
to a voice." www.videovolunteers.org In 2007 Albertans with
Prader-Willi syndrome and their families were interviewed and they
made the same plea. Prader-Willi syndrome is a genetic condition
with a complex presentation of characteristics including a body
chemistry that is a poor compliment to a pronounced food desire.
However, the people interviewed did not ask for a new diet, or
rehabilitation strategies. They asked that people listen. By
empowering persons with Prader-Willi syndrome and their families to
tell their stories, A Recipe For Success gives a voice to those who
have been unheard, and inspires the people who fi ght for them.
This book is a must read for anyone seeking; a cutting-edge
approach to societal health and wellness; an answer to weight
maintenance for themselves or someone they love, and/or; a means of
supporting persons with disabling conditions such as Prader-Willi
syndrome and beyond to achieve meaningful, healthy lives. This book
explores health and wellness, with an emphasis on food drive, as
well as disability culture, through the voices of self-advocates
with PWS and families. It should be read by: . Parents of all
children (disabled and not) who want to instill positive, healthy
food practices. . Adults who have attempted diets and still not
lost the weight. Adults who are seeking an alternate approach. .
Doctors and other medical professionals who seek continuing
education. . Teachers who are negotiating the balance between
organic and teachable conditions. . Self-advocates with disabling
conditions who want to explore their own personal voice through the
voices of others experiencing stigma and oppression. . Family
members of persons with disabling conditions who want to affirm
their experiences and interpretations and learn how to navigate the
systems. . Government administrators who want to inform their
funding allocation. . Extended family, friends, and the
public-at-large who want to understand disability and reexamine
their attitudes. . Human service workers who want to know how best
to support persons with disabling conditions and how to listen to
families. . Anyone who wants to know about Prader-Willi Syndrome.
The goal of this manual is to enhance the capacity of all members
of the educational context, whether student, parent, teacher,
administrator, or consultant, to activate the benefits of infused
technologies for all learners, including those who are blind or
have low vision. To accomplish this purpose this manual provides
background and practical information with respect to inquiry-based
education, infused technologies, and blindness and visual
impairment. You will discover vignettes of real-life blind
learners, tips from a blind educator, key components of accessible
technology- infused education including information on adaptive
technologies for applications that have not yet been designed for
all learners, and practical suggestions to make online courses and
Web sites accessible. For those who wish to explore further, there
are numerous recommendations for further reading, organized to
guide the reader to specific content.
Inside this book are reflections on the nature of vision and
blindness. Further, there are explorations of interpretive
research, and presentations of some seminal and contemporary
publications in the field of blindness. The other major fodder for
conversation with you the reader is an elaborated example of
empirical research entitled Blind Online Learners. Each element of
this inquiry is explicitly reflected upon as an example of
interpretive research. This book is intended for four intersecting
groups of readers. If you are a philosopher, closet or sanctioned,
then you cannot ponder the nature of being without due
consideration for vision, and cannot contemplate the role of seeing
in our lives without listening to the stories of those who are
blind. The tales within this text are particularly contemporaneous
because they are contextualized by the cyber-phenomena of online
learning. This segues to the second group of readers, as the
described empirical research was originally intended to bring
greater depth and breadth of understanding to the field of
educational technology, particularly as it intersects with
disability studies. There is a paucity of published literature that
has inquired into disabled online learners, and this research study
responds to that call. Third, this book may be used as a textbook
on approaches to interpretive empirical research. It is as close as
one may come to a recipe, walking students through a specific
example. Because it is situated in actual empirical research, the
intention was that it avoid the trap of being prescriptive or
formulaic. Finally, the text is intended for readers interested in
the field of blindness. The text reviews some of the seminal and
contemporary research on blindness, and then presents an elaborated
example of what we can and should expect to emerge in the knowledge
production industry, changing what it means to be blind.
Inside this book are reflections on the nature of vision and
blindness. Further, there are explorations of interpretive
research, and presentations of some seminal and contemporary
publications in the field of blindness. The other major fodder for
conversation with you the reader is an elaborated example of
empirical research entitled Blind Online Learners. Each element of
this inquiry is explicitly reflected upon as an example of
interpretive research. This book is intended for four intersecting
groups of readers. If you are a philosopher, closet or sanctioned,
then you cannot ponder the nature of being without due
consideration for vision, and cannot contemplate the role of seeing
in our lives without listening to the stories of those who are
blind. The tales within this text are particularly contemporaneous
because they are contextualized by the cyber-phenomena of online
learning. This segues to the second group of readers, as the
described empirical research was originally intended to bring
greater depth and breadth of understanding to the field of
educational technology, particularly as it intersects with
disability studies. There is a paucity of published literature that
has inquired into disabled online learners, and this research study
responds to that call. Third, this book may be used as a textbook
on approaches to interpretive empirical research. It is as close as
one may come to a recipe, walking students through a specific
example. Because it is situated in actual empirical research, the
intention was that it avoid the trap of being prescriptive or
formulaic. Finally, the text is intended for readers interested in
the field of blindness. The text reviews some of the seminal and
contemporary research on blindness, and then presents an elaborated
example of what we can and should expect to emerge in the knowledge
production industry, changing what it means to be blind.
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