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Having kidney failure is not a unique experience. Neither is
receiving a kidney transplant or undergoing dialysis. Adopting to
irreversible uremia - a devastating illness- by assisting others to
cope with their own life trial represents the best of human traits.
Bonded by marriage for 42 years, I was privileged to love and live
with a marvelous and unique individual whose approach to life with
this horrific disease taught me to regard every moment of our
existence as precious. Preparation of this volume had two main
objectives: 1) To honor the author for all of efforts in behalf of
kidney patients. 2) To disseminate her insights and wisdom to those
who may derive comfort and benefit from her words. Mildred (Barry)
Friedman was a medical writer and patient advocate devoted to the
American Association of Kidney Patients, who died at University
Hospital of Brooklyn on September 21 st 1997 at the age of 61 of
complications of type 1 diabetes. Barry, the second child of
Leontine and Hardinge Barrett-Lennard, was born on October 17,1935
in Manhattan and attended Brooklyn College as a New York State
Scholarship Awardee earning a Bachelor of Arts degree in 1953. She
subsequently began teaching in the New York City elementary schools
gaining a Master's degree in education. Following the birth of her
third child, Barry developed both diabetes and Addison's disease
forcing her retirement from teaching.
Having kidney failure is not a unique experience. Neither is
receiving a kidney transplant or undergoing dialysis. Adopting to
irreversible uremia - a devastating illness- by assisting others to
cope with their own life trial represents the best of human traits.
Bonded by marriage for 42 years, I was privileged to love and live
with a marvelous and unique individual whose approach to life with
this horrific disease taught me to regard every moment of our
existence as precious. Preparation of this volume had two main
objectives: 1) To honor the author for all of efforts in behalf of
kidney patients. 2) To disseminate her insights and wisdom to those
who may derive comfort and benefit from her words. Mildred (Barry)
Friedman was a medical writer and patient advocate devoted to the
American Association of Kidney Patients, who died at University
Hospital of Brooklyn on September 21 st 1997 at the age of 61 of
complications of type 1 diabetes. Barry, the second child of
Leontine and Hardinge Barrett-Lennard, was born on October 17,1935
in Manhattan and attended Brooklyn College as a New York State
Scholarship Awardee earning a Bachelor of Arts degree in 1953. She
subsequently began teaching in the New York City elementary schools
gaining a Master's degree in education. Following the birth of her
third child, Barry developed both diabetes and Addison's disease
forcing her retirement from teaching.
Given the tensions and demands of medicine, highly successful
physicians and surgeons rarely achieve equal success as prose
writers. It is truly extraordinary that a major, international
pioneer in the controversial field of transplant surgery should
have written a spellbinding, and heart-wrenching, autobiography.
Thomas Starzl grew up in LeMars, Iowa, the son of a newspaper
publisher and a nurse. His father also wrote science fiction and
was acquainted with the writer Ray Bradbury. Starzl left the family
business to enter Northwestern University Medical School where he
earned both and M.D. and a PhD. While he was a student, and later
during his surgical internship at the Johns Hopkins Hospital, he
began the series of animal experiments that led eventually to the
world\u2019s first transplantation of the human liver in 1963.
Throughout his career, first at the University of Colorado and then
at the University of Pittsburgh, he has aroused both worldwide
admiration and controversy. His technical innovations and medical
genius have revolutionized the field, but Starzl has not hesitated
to address the moral and ethical issues raised by transplantation.
In this book he clearly states his position on many hotly debated
issues including brain death, randomized trials for experimental
drugs, the costs of transplant operations, and the system for
selecting organ recipients from among scores of desperately ill
patients. There are many heroes in the story of transplantation,
and many \u201cpuzzle people,\u201d the patients who, as one
journalist suggested, might one day be made entirely of various
transplanted parts. They are old and young, obscure and world
famous. Some have been taken into the hearts of America, like
Stormie Jones, the brave and beautiful child from Texas. Every
patient who receives someone else\u2019s organ - and Starzl
remembers each one - is a puzzle. \u201cIt was not just the
acquisition of a new part,\u201d he writes. \u201cThe rest of the
body had to change in many ways before the gift could be accepted.
It was necessary for the mind to see the world in a different
way.\u201d The surgeons and physicians who pioneered
transplantation were also changed: they too became puzzle people.
\u201cSome were corroded or destroyed by the experience, some were
sublimated, and none remained the same.\u201d
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