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Full of evidence-based, easy to understand information about CHD,
Healing Hearts and Minds offers strategies for learning to thrive
despite living with this condition, but most importantly it will
offer hope and connection. Congenital Heart Disease (CHD) is the
most commonly diagnosed birth abnormality in the US. With great
advances in surgery and medicine, however, survival rates have
improved by 75% since the 1940s. Welcome news, of course, as only a
few decades ago these birth defects were considered a death
sentence, but as with any chronic condition, survival does not mean
the issue is cured. With better medical care, babies born today
with CHD have a good chance of surviving, but throughout their
entire lives they can face surgeries, invasive treatments, lifelong
monitoring, frequent medical check-ups, and significant limitations
on physical activity, in addition to poor public awareness which
can have an impact on social inclusion and understanding. Much
attention has rightly been focused on the medical needs of these
children and on providing their parents and caretakers with
resources and information to navigate the complexities of this
chronic condition. Little attention, however, has been paid to the
psychosocial impacts on these individuals, especially as they grow,
mature, and become adults living with a serious, chronic medical
condition. Prevalence rates for anxiety, depression, and PTSD are
significantly higher (2-3x in some cases) for people living with
CHD than the general adult population. From feeling self-conscious
about scars and limitations on physical activity and sense of loss
around so many of life's little normalcies, to frequent hospital
visits and living in constant fear of an emergency, this condition
is ever-present. Liza Morton and Tracy Livecchi are both mental
health professionals who have developed a specialty in working with
clients who have chronic medical conditions, and they are both
themselves living with CHD. In this book they set out to provide
the resources and support they have been looking for their entire
adult lives. While their powerful personal stories are woven into
the narrative, the book is focused on providing evidence-based
coping and self-care skills for adults living with CHD.
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