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Like many people with Tourette syndrome, Troye Evers' symptoms
began early in his childhood, but he was not officially diagnosed
until he was eighteen years old. He remained in the closet about
his diagnosis until his thirties, falsely attempting to pass off
his symptoms as the result of bad sleep or a dry throat. After
deciding he had enough, he penned a screenplay about his
experiences that went on to win third place in the All Access
Screen Writing competition. Two years later, he found himself voted
on to the board of the Tourette Syndrome Association of New York
City. Now using his influence and writing skills, he has collected
the stories of seventeen other people, from all walks of life,
living with Tourette syndrome. This breakthrough book will dispel
several pernicious myths about the disorder. Contrary to media
stereotypes about the disease, the vast majority of those with
Tourette syndrome do not yell out profanities and other
inappropriate remarks. Only ten percent of sufferers are prone to
episodes of coprolalia, the yelling of obscenities. Instead, the
neuropsychiatric disorder is marked by a combination of motor tics,
such as uncontrollable arm waving, neck twitching, shoulder
rolling, and speech tics. In these stories, each person reveals how
the disorder has transformed their life for both good and bad.
"From talking about daily bullying, teasing, mocking, and their
fight for acceptance, they open up to the reader, explain how they
conquered the fear of honesty, and became strong, confident members
of society with a beautiful message," writes Evers. This book is
not intended as a medical reference but as an education tool that
allows readers to glimpse the lives of others affected by Tourette
syndrome. As few others understand the reality of their condition,
many spend their whole lives suppressing their symptoms and
suppress their own personalities in the process. Incisive and
eye-opening, this book makes their realities come alive.
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