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Disability and spirituality have traditionally been understood as
two distinct spheres: disability is physical and thus belongs to
health care professionals, while spirituality is religious and
belongs to the church, synagogue, or mosque and their theologians,
clergy, rabbis, and imams. This division leads to stunted
theoretical understanding, limited collaboration, and segregated
practices, all of which contribute to a lack of capacity to see
people with disabilities as whole human beings and full members of
a diverse human family. Contesting the assumptions that separate
disability and spirituality, William Gaventa argues for the
integration of these two worlds. As Gaventa shows, the quest to
understand disability inevitably leads from historical and
scientific models into the world of spiritualityato the ways that
values, attitudes, and beliefs shape our understanding of the
meaning of disability. The reverse is also true. The path to
understanding spirituality is a journey that leads to disabilityato
experiences of limitation and vulnerability, where the core
questions of what it means to be human are often starkly and
profoundly clear. In Disability and Spirituality Gaventa constructs
this whole and human path before turning to examine spirituality in
the lives of those individuals with disabilities, their families
and those providing care, their friends and extended relationships,
and finally the communities to which we all belong. At each point
Gaventa shows that disability and spirituality are part of one
another from the very beginning of creation. Recovering wholeness
encompasses their reunionaa cohesion that changes our vision and
enables us to everyone as fully human.
Learn about inclusive religious practices from around the
world!With a multidisciplinary and anthropological perspective,
Spirituality and Intellectual Disability: International
Perspectives on the Effect of Culture and Religion on Healing Body,
Mind, and Soul takes a fresh, innovative look into the world of
religious and spiritual practices for the intellectually disabled.
Containing vital insights from the first strand on spiritualit and
disability at the quadrennial conference of the International
Association for Scientific Study of Intellectual Disability
(Seattle, 2000), this book provides a framework for bridging the
gap between science and faith. It explores the ways in which faith
traditions, cultural backgrounds, and professional roles can help
bring about a consensus about what spiritual health means within
specific cultures and faiths and across disciplines. This
informative book examines and provides cutting-edge information on:
recognition of spirituality in health care defining and assessing
spirituality and spiritual supports perspectives on intellectual
disability from Judiasm, Islam, Roman Catholicism, and Native
American spirituality creative models of community ministry and
religious education liturgical celebrations with people who have
severe mental disabilities
Do people with mental retardation have a special prophetic role?In
the field of developmental disabilities, Wolf Wolfensberger is
famous for his seminal book Normalization. But Wolfensberger is
also a theologian, and the two strands of his thought are
inextricable. The Theological Voice of Wolf Wolfensberger showcases
his theories on the spiritual meaning of mental retardation and
other disabilities.Up until now, Wolfensberger's work has been
available only in small, hard-to-find publications, mostly in the
field of human services. Thus his theological perspectives have not
yet been heard in many religious circles. The Theological Voice of
Wolf Wolfensberger brings together his essays and presentations
from the past thirty years, giving the reader a unique pathway into
his pioneering ideas on the spiritual implications of developmental
disabilities. In addition, the volume includes critiques of his
thought by several noted scholars and practitioners, along with
Wolfensberger's response to those critiques.The Theological Voice
of Wolf Wolfensberger expresses powerful opinions, some outrageous,
all courageous. You will find yourself intently engaged with his
provocative theories, including: why installing wheelchair access
ramps may actually block full participation of the handicapped in
the life of the church how the "deathmaking" culture of the modern
world prevents Christians from understanding the meaning of
suffering why people with mental retardation are the prophets of
our times why most Christians ignore the powerful Biblical call to
communality which special gifts of grace people with mental
retardation may possess how handicapped and societally devalued
patients can be protected from the neglect (or worse) of hospital
staff The Theological Voice of Wolf Wolfensberger is challenging,
inspiring, and sometimes infuriating. It is bound to stir up
controversy among health care professionals, disability advocates,
and anyone concerned with spiritual matters. You may not agree with
Wolfensberger, as some of the contributors to this volume do not,
but he will make you think . . . hard.
Two cogent arguments about end-of-life careand carefully reasoned
responses from experts End-of-Life Care: Bridging Disability and
Aging with Person Centered Care features two primary papers on the
controversial issue of end-of-life care within the disabled and
aging populations. Each paper explainsclearly and honestlythe
multitude of issues involved in using person centered care. The
first is from a father and nationally known advocate for the
disabledRud Turnbullspeaking from a disability perspective about
his disabled son. The second is from respected theologian M. J.
Iozzio speaking from the aging perspective about her father's
Alzheimer's disease. Responses from experts in the field follow,
thoughtfully raising further points to consider about policies,
ethics, quality of life, and consent. The two central papers from
End-of-Life Care focus on person centered, interdependent care
using the personal reflections of two close family members and
their views about end-of-life care. The responses that follow each
are direct, thoughtful, and concentrate on the issues in
end-of-life planning using person centered care. This difficult and
important issue is discussed in detail by lawyers, theologians,
clinical practitioners, and professional service providers, and
includes several revealing personal stories about end-of-life
experiences. Helpful resources for both policy and practice are
also presented to assist the reader to learn more. End-of-Life Care
discusses: who, how, and on what grounds end-of-life decisions
should be made for the developmentally/intellectually disabled best
practices information from Volunteers of America's Last Passages
project the unique challenges faced by individuals with
disabilities and their families when confronting issues of death
and dying the protection of the rights of the disabled from
discrimination person centered care for the aging with complicating
health conditions like Alzheimer's Disease helping all people to
clearly communicate their end-of-life wishes End-of-Life Care
explores explores policy, theological, and personal dimensions of
end of life care, and the ways that person centered care can bridge
the fields of aging and disabilty.
Do people with mental retardation have a special prophetic role?In
the field of developmental disabilities, Wolf Wolfensberger is
famous for his seminal book Normalization. But Wolfensberger is
also a theologian, and the two strands of his thought are
inextricable. The Theological Voice of Wolf Wolfensberger showcases
his theories on the spiritual meaning of mental retardation and
other disabilities.Up until now, Wolfensberger's work has been
available only in small, hard-to-find publications, mostly in the
field of human services. Thus his theological perspectives have not
yet been heard in many religious circles. The Theological Voice of
Wolf Wolfensberger brings together his essays and presentations
from the past thirty years, giving the reader a unique pathway into
his pioneering ideas on the spiritual implications of developmental
disabilities. In addition, the volume includes critiques of his
thought by several noted scholars and practitioners, along with
Wolfensberger's response to those critiques.The Theological Voice
of Wolf Wolfensberger expresses powerful opinions, some outrageous,
all courageous. You will find yourself intently engaged with his
provocative theories, including: why installing wheelchair access
ramps may actually block full participation of the handicapped in
the life of the church how the "deathmaking" culture of the modern
world prevents Christians from understanding the meaning of
suffering why people with mental retardation are the prophets of
our times why most Christians ignore the powerful Biblical call to
communality which special gifts of grace people with mental
retardation may possess how handicapped and societally devalued
patients can be protected from the neglect (or worse) of hospital
staff The Theological Voice of Wolf Wolfensberger is challenging,
inspiring, and sometimes infuriating. It is bound to stir up
controversy among health care professionals, disability advocates,
and anyone concerned with spiritual matters. You may not agree with
Wolfensberger, as some of the contributors to this volume do not,
but he will make you think . . . hard.
Disability and spirituality have traditionally been understood as
two distinct spheres: disability is physical and thus belongs to
health care professionals, while spirituality is religious and
belongs to the church, synagogue, or mosque and their theologians,
clergy, rabbis, and imams. This division leads to stunted
theoretical understanding, limited collaboration, and segregated
practices, all of which contribute to a lack of capacity to see
people with disabilities as whole human beings and full members of
a diverse human family. Contesting the assumptions that separate
disability and spirituality, William Gaventa argues for the
integration of these two worlds. As Gaventa shows, the quest to
understand disability inevitably leads from historical and
scientific models into the world of spiritualityato the ways that
values, attitudes, and beliefs shape our understanding of the
meaning of disability. The reverse is also true. The path to
understanding spirituality is a journey that leads to disabilityato
experiences of limitation and vulnerability, where the core
questions of what it means to be human are often starkly and
profoundly clear. In Disability and Spirituality Gaventa constructs
this whole and human path before turning to examine spirituality in
the lives of those individuals with disabilities, their families
and those providing care, their friends and extended relationships,
and finally the communities to which we all belong. At each point
Gaventa shows that disability and spirituality are part of one
another from the very beginning of creation. Recovering wholeness
encompasses their reunionaa cohesion that changes our vision and
enables us to everyone as fully human.
Two cogent arguments about end-of-life careand carefully reasoned
responses from experts End-of-Life Care: Bridging Disability and
Aging with Person Centered Care features two primary papers on the
controversial issue of end-of-life care within the disabled and
aging populations. Each paper explainsclearly and honestlythe
multitude of issues involved in using person centered care. The
first is from a father and nationally known advocate for the
disabledRud Turnbullspeaking from a disability perspective about
his disabled son. The second is from respected theologian M. J.
Iozzio speaking from the aging perspective about her father's
Alzheimer's disease. Responses from experts in the field follow,
thoughtfully raising further points to consider about policies,
ethics, quality of life, and consent. The two central papers from
End-of-Life Care focus on person centered, interdependent care
using the personal reflections of two close family members and
their views about end-of-life care. The responses that follow each
are direct, thoughtful, and concentrate on the issues in
end-of-life planning using person centered care. This difficult and
important issue is discussed in detail by lawyers, theologians,
clinical practitioners, and professional service providers, and
includes several revealing personal stories about end-of-life
experiences. Helpful resources for both policy and practice are
also presented to assist the reader to learn more. End-of-Life Care
discusses: who, how, and on what grounds end-of-life decisions
should be made for the developmentally/intellectually disabled best
practices information from Volunteers of America's Last Passages
project the unique challenges faced by individuals with
disabilities and their families when confronting issues of death
and dying the protection of the rights of the disabled from
discrimination person centered care for the aging with complicating
health conditions like Alzheimer's Disease helping all people to
clearly communicate their end-of-life wishes End-of-Life Care
explores explores policy, theological, and personal dimensions of
end of life care, and the ways that person centered care can bridge
the fields of aging and disabilty.
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