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Allies and Obstacles - Disability Activism and Parents of Children with Disabilities (Hardcover)
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Allies and Obstacles - Disability Activism and Parents of Children with Disabilities (Hardcover)
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Parents of children with disabilities often situate their activism
as a means of improving the world for their child. However, some
disabled activists perceive parental activism as working against
the independence and dignity of people with disabilities. This
thorny relationship is at the heart of the groundbreaking Allies
and Obstacles. The authors chronicle parents' path-breaking
advocacy in arenas such as the right to education and to liberty
via deinstitutionalization as well as how they engaged in legal and
political advocacy. Allies and Obstacles provides a macro analysis
of parent activism using a social movement perspective to reveal
and analyze the complex-and often tense-relationship of parents to
disability rights organizations and activism. The authors look at
organizational and individual narratives using four case studies
that focus on intellectual disability, psychiatric diagnoses,
autism, and a broad range of physical disabilities including
cerebral palsy and muscular dystrophy. These cases explore the
specific ways in which activism developed among parents and people
with disabilities, as well as the points of alliance and the key
points of contestation. Ultimately, Allies and Obstacles develops
new insights into disability activism, policy, and the family.
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