I wanted to write about people who have a disease which destroys
the ability to communicate or recognise anyone, causes the loss of
bodily functions, forces dependency and dehumanises the sufferer -
as Lewy body dementia did to my Mum. Some form of dementia affects
1 in 20 of the over 65's and 1 in 5 of over 80's, so many of us -
how does it feel if you know that it is happening to you? Some
sufferers have said that it enriches awareness and acts as a prism
through which life is viewed differently. I could see that fantasy
and reality merged in my Mum's mind and often wondered if she had
an alternative world where her insecurities and fears manifested
themselves as monsters and where she was powerful, resourceful and
a leader, in contrast to her claustrophobic, trapped and
deteriorating reality. Hopefully there is still power and
creativity in the human mind even when it is damaged by plaques and
tangles. I have imagined her thoughts based on what she said to me
and from what I observed and have described factually and honestly
the journey we took together. Recording my experience of her
illness, treatment and life in two nursing homes led me to question
how we treat our elderly, our shocking lack of effort to
communicate with those with dementia and what constitutes identity,
self and the soul. 'Over Streams and Squirrel Woods' explores what
can happen when reality becomes too painful, and the disconnection
between people when they see and hear differently from one another.
It is about boundless love, frustration, guilt and the inexorable
inevitability of aging. "This is a valuable addition to the
dementia literature, rewriting our expectation of what those with
dementia can think." John Suchet.
General
Imprint: |
Authorhouse
|
Country of origin: |
United States |
Release date: |
November 2011 |
First published: |
November 2011 |
Authors: |
Alys Williams
|
Dimensions: |
229 x 152 x 17mm (L x W x T) |
Format: |
Paperback - Trade
|
Pages: |
300 |
ISBN-13: |
978-1-4567-8776-9 |
Categories: |
Books >
Fiction >
General & literary fiction >
Modern fiction
|
LSN: |
1-4567-8776-4 |
Barcode: |
9781456787769 |
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