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Books > Medicine > Clinical & internal medicine > Dermatology
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Epidermolysis Bullosa - Basic and Clinical Aspects (Paperback, Softcover reprint of the original 1st ed. 1992)
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Epidermolysis Bullosa - Basic and Clinical Aspects (Paperback, Softcover reprint of the original 1st ed. 1992)
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Because skin blisters are the initial manifestation of
epidermolysis bullosa (EB), patients invariably present to the
dermatologist for diagnosis and treatment. However, EB is a
systemic disease whose management requires input from clinicians in
virtually all fields of medicine, including pediatri cians,
surgeons, dentists, gastroenterologists, hematologists,
otorhinolaryn gologists, dietitians, and physical therapists, to
name a few. Because EB is a rare disease, few clinicians are
familiar with it, and many recoil at the pros pect of caring for
individuals covered with blisters caused by a disease they know
little about. For patients, insult is thus added to injury and they
feel abandoned, neglected, and frustrated. One way to remedy this
deplorable situation is to provide clinicians with a compact source
of information de tailing the principles of EB diagnosis and
treatment. This text seeks to fulfill this role. From 1986-1991,
The Rockefeller University Hospital has been the co ordinating
center of the National EB Registry. Supported by The National
Institutes of Health, this Registry consists of four university
centers* commit ted to collecting clinical data concerning
diagnosis, treatment, and epidemio logy on all American EB
patients. As of April 1992, nearly 1,799 EB patients have enrolled
nationwide. The Registry is now in its second five-year phase of
operation."
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