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Genetic Screening of Newborns - An Ethical Inquiry (Hardcover, New)
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Genetic Screening of Newborns - An Ethical Inquiry (Hardcover, New)
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This book looks at genetic screening of new-borns and the ethical
principles that guide this practice. The majority of babies born in
the U.S. each year undergo screening soon after birth to identify
genetic defects that could cause serious illness if left undetected
and untreated. The goal is to detect diseases as early as possible
so that timely, effective treatment can be initiated even before
the onset of symptoms. In most states, new-born screening is now
mandated by law. Of the approximately four million babies screened
each year, about 5,000 are identified as having serious heritable
disorders, most of which are, in varying degrees, amenable to
treatment. For more than 40 years, the moral focus of new-born
screening has been what is good for the infant. However, as more
and more disorders have been added to state new-born screening
programs, the traditional ethical principles of screening have been
called into question. This aim of this study is to foster public
awareness of the practice of new-born screening, the ethical
principles that have guided it until now, and the ethical problems
posed by its current and future expansion. This book consists of
public documents which have been located, gathered, combined,
reformatted, and enhanced with a subject index, selectively edited
and bound to provide easy access.
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