The teenage years are a time when teens often begin separating
their thoughts, goals, and self-image from those of their parents.
They begin exploring who they are and who they want to become as
they enter adulthood. For people living with a chronic disease,
like a lysosomal storage disease, the teen years should also
include a gradual transfer of medical care responsibility from
parents to the teens themselves. As you might guess, it's a lot
easier to learn to do this slowly and with a plan, rather than
jumping headfirst into a fast and confusing crash course of medical
needs on your 18th birthday. This workbook, Transitions: Managing
Your Own Healthcare, is packed full of exercises designed to help
teens figure out how much they already are managing their own
healthcare and how to uncover what they still need to learn and
master to successfully manage their own healthcare.
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