There is growing interest in the impact of patients' illness on the
quality of life of family members. Much of the previous research
focuses on the impact on family members who are also carers, or is
restricted to one disease or disease area. This book describes the
conceptualisation, development and validation of the first generic
quality of life measure for family members, the Family Reported
Outcome Measure (FROM-16). The book presents the findings of a
literature review looking at current research into the area of
family quality of life and highlights the need for a generic family
measure. The process and results of interviews with 126 family
members are discussed, and the development and validation processes
of the measure are described in detail, including Item Response
Theory and Classical Test Theory. Finally, this book details the
potential uses of the FROM-16 and the challenges faced by
clinicians, researchers and society in measuring family quality of
life.
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