In order for the information society to realise its full potential,
personal data has to be disclosed, used and often shared. This book
explores the disclosure and sharing of data within the area of
healthcare. Including an overview of how health information is
currently managed, the authors argue that with changes in modern
society, the idea of personal relationships with a local GP who
solely holds and controls your health records is becoming rapidly
outdated. The authors aim to encourage and empower patients to make
informed choices about sharing their health data. They do this by
developing a three-stage theoretical model for change to the roles
of the NHS and the individual. The study generates debate to
stimulate and inspire new models and policy, and to provoke new
visions for the sharing of healthcare data. Such discussion is
framed through an exploration of the changing concept of 'privacy'
and 'patient control' in healthcare information management. The
volume draws on best practices from Europe and the USA and combines
these to form a suggested vision for the UK as an early adopter of
change. The volume will be essential reading for academics in the
field of privacy and data protection, as well as healthcare and
informatics professionals across different jurisdictions.
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