People with dementia have often played a passive role in the
investigation of their condition. The contributors to this book
look at ways of redressing the balance and involving them in the
research process. They describe the skills that researchers and
care staff need, and the methods they can use, when seeking to draw
out and validate the views of people with dementia successfully,
and discuss the ways in which such views can be included in debates
about dementia methodology and policy. The book focuses on a number
of projects which have taken different approaches to working with
people with dementia in research, including a chapter examining the
difficult process of interviewing people with dementia whose first
language is not English and a chapter describing a project which
encourages people with dementia to participate in the analysis of
the research findings. This varied and innovative book will help
those in the fields of health and social policy, dementia research
and dementia care to hear the voices of people with dementia more
clearly, and to include their opinions more effectively in the
provision of services.
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