This book is a first-hand account of my journey with Multiple
Sclerosis (MS). As I went through the stages of diagnosis to
disease management, it became apparent that while there were
numerous books written on the subject of MS, most focused on the
medical or clinical aspects of the disease. While these sources
were certainly empirically informative, they were coldly lacking in
the emotional preparation and guidance that I needed. There is a
profoundly personal side to any life changing diagnosis, and this
is where the true struggle resided for me. I couldn't turn to
anything of a nonclinical substance that would help guide me
through the emotional and mental turmoil I was experiencing. There
was so much I wanted to know not only from my doctors, but also
from other people with MS. As I started navigating my way through
things in a bit of a clumsy fashion, I was inspired to write down
my thoughts and insight as that new person with MS and what they
would likely want to know not only about the disease but also about
themselves. This book covers the time I reflected over the year
leading up to my diagnosis and the first year after receiving my
diagnosis with MS. The book is divided into three distinct parts.
Part One looks at a wide variety of personal topics and experiences
and the impact Multiple Sclerosis has played on each. There are
times of frustration, denial and sorrow. There are topics of
extreme support and heroes that have stepped up in my journey.
There are character traits that can be of benefit and others that
can be detrimental. The intent has been to capture these aspects,
feelings and thought provoking situations and how MS has touched it
all. In a way, this section is a reflection of my own personal
struggle through the initial blow of learning about my MS and
coming to accept it as a part of who I now am. Part Two focuses on
moving from a position of understanding to truly accepting what MS
means in my life. Acceptance doesn't just mean sitting still, but
gaining a clear mind on how you are going to choose to live with
MS. Acceptance is not just formed from the perspective of being
that someone with MS, but it is formed by the people around me as
well. Friends, coworkers, and family all will be affected by this
disease in some way, and it is vitally important that we prepare to
help everyone touched by MS come to a pure sense of acceptance.
Part Three is all about capitalizing on the sense of acceptance and
beginning to focus on those specific efforts and the needed energy
to beat it. Knowing there is no cure today does not mean that I
just give up. There are so many things that can be done to maintain
a "normal" life, but it takes work and a proactive frame of mind.
Like many struggles we can all face in our lives, MS is really no
different. There is almost always a way to make a situation like
this better, but it does take time, effort, and determination. From
a personal perspective, this book intends to do two things...to
help others better understand the everyday experiences of a person
with MS, to know what the disease takes away, and also what the
disease gives. The second, to help me as a person with MS move
beyond merely accepting this disease and knowing that regardless of
what limitations I may end up with, that I can contribute to a
better result, a brighter future for someone, be a better father
and husband to my family, and look back and feel good about my
life...every minute of it. Life can be so much more if I can find
the way to live with MS in my life rather than find a way to fit my
life into MS. My wish to the second point is that it will do the
same for you.
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