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Reciprocity in Population Biobanks - Relational Autonomy and the Duty to Inform in the Genomic Era (Paperback)
Loot Price: R2,700
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Reciprocity in Population Biobanks - Relational Autonomy and the Duty to Inform in the Genomic Era (Paperback)
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Reciprocity in Population Biobanks: Relational Autonomy and the
Duty to Inform in the Genomic Era begins by discussing how current
judicial interpretation keeps standard of disclosure at the core of
genomic research. The book then outlines multiple limitations
individualistic autonomy faces in the context of gene and
population biobanks, including an analysis of the complexities of
benefit considerations in the research setting. Second, the book
explores how individualistic autonomy fails to acknowledge the
multilateral relationships implicated in genomic research,
including those that affect the broader research community,
research participants' families, and the general public. In
carrying out this analysis, this book pays special attention to
alternative approaches and ways researchers, public health
officials, and judicial bodies might interact in years to come. In
other words, implementing an understanding of relational autonomy
that acknowledges and sustains the multilateral relationships found
in genomic research without compromising the rights of
participants. In short, this book proposes a reconceived duty to
inform for researchers and a new standard of disclosure that is
more meaningful and impactful for research participants and
researchers.
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