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Books > Medicine > General issues > Medical ethics
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The Ethics and Governance of Human Genetic Databases - European Perspectives (Hardcover, New)
Loot Price: R2,788
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The Ethics and Governance of Human Genetic Databases - European Perspectives (Hardcover, New)
Series: Cambridge Law, Medicine and Ethics
Expected to ship within 12 - 17 working days
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The Medical Biobank of Umea in Sweden, deCODE's Health Sector
Database in Iceland, the Estonian Genome Project and the UK Biobank
contain health data and genetic data from large populations. Some
include genealogical or lifestyle information. They are resources
for research in human genetics and medicine, exploring interaction
between genes, lifestyle, environmental factors and health and
diseases. The collection, storage and use of this data raise
ethical, legal and social issues. In this book, first published in
2007, bioethics scholars examine whether existing ethical
frameworks and social policies reflect people's concerns, and how
they may need to change in light of new scientific and
technological developments. The ethical issues of social justice,
genetic discrimination, informational privacy, trust in science and
consent to participation in database research are analyzed, whilst
an empirical survey, conducted in the four countries, demonstrates
public views of privacy and related moral values in the context of
human genetic databases.
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