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Legalising Mitochondrial Donation - Enacting Ethical Futures in UK Biomedical Politics (Hardcover, 1st ed. 2018)
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Legalising Mitochondrial Donation - Enacting Ethical Futures in UK Biomedical Politics (Hardcover, 1st ed. 2018)
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In 2015 the UK became the first country in the world to legalise
mitochondrial donation, a controversial germ line reproductive
technology to prevent the transmission of mitochondrial disease.
Dimond and Stephens track the intense period of scientific and
ethical review, public consultation and parliamentary debates
preceeding the decision. They draw on stakeholder accounts and
public documents to explore how patients, professionals,
institutions and publics mobilised within 'for' and 'against'
clusters, engaging in extensive promissory, emotional,
bureaucratic, ethical, embodied and clinical labour to justify
competing visions of an ethical future. They describe how this
decision is the latest iteration of a UK sociotechnical imaginary
in which the further liberalization of human embryo research and
use is rendered legitimate and ethical through modes of
consultation and permissive but strictly regulated licensing.
Overall, this book presents a timely, multi-dimensional, and
sociological account of a globally significant landmark in the
history of human genetics, and will be relevant to those with an
interest in genetics, Science, Technology and Society, the
sociology of medicine, reproductive technology, and public policy
debate.
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