The Human Genome Project is an expensive, ambitious, and
controversial attempt to locate and map every one of the
approximately 100,000 genes in the human body. If it works, and we
are able, for instance, to identify markers for genetic diseases
long before they develop, who will have the right to obtain such
information? What will be the consequences for health care, health
insurance, employability, and research priorities? And, more
broadly, how will attitudes toward human differences be affected,
morally and socially, by the setting of a genetic "standard"? The
compatibility of individual rights and genetic fairness is
challenged by the technological possibilities of the future, making
it difficult to create an agenda for a "just genetics." Beginning
with an account of the utopian dreams and authoritarian tendencies
of historical eugenics movements, this book's nine essays probe the
potential social uses and abuses of detailed genetic information.
Lucid and wide-ranging, these contributions will interest
bioethicists, legal scholars, and policy makers. Essays: "The
Genome Project and the Meaning of Difference," Timothy F. Murphy
"Eugenics and the Human Genome Project: Is the Past Prologue?,"
Daniel J. Kevles "Handle with Care: Race, Class, and Genetics,"
Arthur L. Caplan "Public Choices and Private Choices: Legal
Regulation of Genetic Testing," Lori B. Andrews "Rules for Gene
Banks: Protecting Privacy in the Genetics Age," George J. Annas
"Use of Genetic Information by Private Insurers," Robert J.
Pokorski "The Genome Project, Individual Differences, and Just
Health Care," Norman Daniels "Just Genetics: A Problem Agenda,"
Leonard M. Fleck "Justice and the Limitations of Genetic
Knowledge," Marc A. Lappe This title is part of UC Press's Voices
Revived program, which commemorates University of California
Press's mission to seek out and cultivate the brightest minds and
give them voice, reach, and impact. Drawing on a backlist dating to
1893, Voices Revived makes high-quality, peer-reviewed scholarship
accessible once again using print-on-demand technology. This title
was originally published in 1994.
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