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Supporting the Child and the Family in Paediatric Palliative Care
provides a comprehensive overview of good practice in caring for
terminally-ill children, young people and their families. Drawing
from extensive personal experiences of working in paediatric
palliative care, the author provides guidance on issues including
symptom management and pain relief; cultural, religious and
spiritual aspects of care; and the role of education for
life-limited children. Addressing the importance of individual
needs, the book looks at emotional, social and cognitive support at
different stages of the illness, how parents and professionals can
respond to children's own questions about death, and the impact of
life-limiting illness on the whole family - including grandparents
and siblings. The material offers helpful suggestions on how to
support families in making informed choices during distressing
periods, such as where their child will die and how to prepare for
the funeral. This book is a practical and invaluable tool for
nurses, paediatricians, hospice care staff, bereavement counsellors
and all those caring for life-limited children.
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